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  • About Me

    Image of Cay

    Cay

    Female
    FL, USA
    Member since March 19

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    • Ray of Sunshine

      From FinallyNotCrazy June 22

      Thanks for the info I googled it...doesn't mean I feel anymore confident in myself, lol, but it's getting easier to think about. I talked with my aunt about it today and she made me feel better by saying I know I don't have the first clue as to what you are feeling and it sounds really easy for me to say you'll get use to it you'll be ok. Finally someone who doesn't have to look forward to this that understands that the last thing I want to hear is a "normal" Joe saying 'well if it were me I could do it, rather a shot then death.'
      You have brought me some sunshine! Thank You so much!
      Good Luck to you and GOD BLESS!

    Read Hugbook

  • Support Groups

    • Close Deep Vein Thrombosis (DVT)

      Treatments

      Lovenox Working / Worked
      It worked wonderfully - with in a week my large clot behind my leg that had been there for 3 months broke up. Would def. do again
      Coumadin Not Working
      Did not work at all. Clots spread all the way up my leg, and had a PE. My levels were all over the place - not effective. Went from a 1.2 (we have that normally) to a 11, my diet was strictly monitored so they could not figure out why it did not stabilize.
      Lovenox Working / Worked
      Worked - stabilized me, no problems, and even helped my chrons disease. 8 months on it, I did see some side effects, there was bruising (which is controllable - constant me for how I did it), my hair thinned out and got very brittle
    • Close Crohn's Disease & Ulcerative Colitis

      Hello, I am in my early twenties and enrolled in a local college. I am here because I was diagnosed with CD in 2005 and I am still trying to find different ways of coping with it. I have been watching my diet – most things that I could not eat before I still cannot eat. I am more into the natural way instead of drugs – I have an elemental diet I can now control my flairs on – Looking fw to meeting everyone :)

      Treatments

      Asacol Somewhat Helpful
      It worked at first - I was on the largest dose possible. When my CD stopped flairing the Pentasa almost seemed to re-flair it. I am now on a low dose - but if I come completely off of it my CD will flair again. Its a fine balance
      Avoid Certain Foods / Chemicals Working / Worked
      IT works! I am still learning to stay away from certain things. I cannot eat bread - and its so hard because I crave carbs for some reason!
      Dietary Modification Working / Worked
      No Bread!!!!! Red meat does not seem to agree well either
      Prednisone Working / Worked
      I take this off and on - if the elemental diet cannot knock it down. Once every 6 months at the Most
      Probiotics Working / Worked
      This works - I was able to up my dose of Natren's Healthy Trinity Probiotics after 3 years of being on one pill. If I come off of it my CD flairs. The upside is that I find I can eat some foods and be fine - when other people ate with me and it didnt go over well with them.
    • Open Migraine Headaches

      I suffered from severe but occasional migraines, but in the recent years they have gotten worse and I would like (and need) to learn more about migraine headaches.

      Treatments

      Acupuncture Somewhat Helpful
      It takes the pain down a few pegs - but I was told it was more for long term prevention. Such as instead of getting a migraine that is on the scale of 10 I would get one that is on the scale of 6. It has worked thus far.
      Aspirin Not Working
      Avoid Certain Foods / Chemicals Working / Worked
      This really helps
      Caffeine Somewhat Helpful
      Depends on what type of migraine I have - sometimes it makes it worse
      Excedrin Somewhat Helpful
      Helps sometimes
      Fioricet Working / Worked
      Works great with mobic, only thing that works for me.
      Imitrex Not Working
      Severely allergic to
      Magnesium Working / Worked
      Works at 600 mg for me, helps abort them.
      Relpax Not Working
      Allergic to
      Topamax Not Working
      Caused severe depression
      Tylenol Somewhat Helpful
      Works when the migraine is not too bad - maybe 20% of the time
      Verapamil Not Working
      side effects were terrible
  • Friends


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