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About Me
Cay
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Hugbook
Ray of Sunshine
Thanks for the info I googled it...doesn't mean I feel anymore confident in myself, lol, but it's getting easier to think about. I talked with my aunt about it today and she made me feel better by saying I know I don't have the first clue as to what you are feeling and it sounds really easy for me to say you'll get use to it you'll be ok. Finally someone who doesn't have to look forward to this that understands that the last thing I want to hear is a "normal" Joe saying 'well if it were me I could do it, rather a shot then death.'
You have brought me some sunshine! Thank You so much!
Good Luck to you and GOD BLESS!
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Support Groups
Close Deep Vein Thrombosis (DVT)
Treatments
- Lovenox Working / Worked
- It worked wonderfully - with in a week my large clot behind my leg that had been there for 3 months broke up. Would def. do again
- Coumadin Not Working
- Did not work at all. Clots spread all the way up my leg, and had a PE. My levels were all over the place - not effective. Went from a 1.2 (we have that normally) to a 11, my diet was strictly monitored so they could not figure out why it did not stabilize.
- Lovenox Working / Worked
- Worked - stabilized me, no problems, and even helped my chrons disease. 8 months on it, I did see some side effects, there was bruising (which is controllable - constant me for how I did it), my hair thinned out and got very brittle
Close Crohn's Disease & Ulcerative Colitis
Hello, I am in my early twenties and enrolled in a local college. I am here because I was diagnosed with CD in 2005 and I am still trying to find different ways of coping with it. I have been watching my diet – most things that I could not eat before I still cannot eat. I am more into the natural way instead of drugs – I have an elemental diet I can now control my flairs on – Looking fw to meeting everyone :)
Treatments
- Asacol Somewhat Helpful
- It worked at first - I was on the largest dose possible. When my CD stopped flairing the Pentasa almost seemed to re-flair it. I am now on a low dose - but if I come completely off of it my CD will flair again. Its a fine balance
- Avoid Certain Foods / Chemicals Working / Worked
- IT works! I am still learning to stay away from certain things. I cannot eat bread - and its so hard because I crave carbs for some reason!
- Dietary Modification Working / Worked
- No Bread!!!!! Red meat does not seem to agree well either
- Prednisone Working / Worked
- I take this off and on - if the elemental diet cannot knock it down. Once every 6 months at the Most
- Probiotics Working / Worked
- This works - I was able to up my dose of Natren's Healthy Trinity Probiotics after 3 years of being on one pill. If I come off of it my CD flairs. The upside is that I find I can eat some foods and be fine - when other people ate with me and it didnt go over well with them.
Open Migraine Headaches
I suffered from severe but occasional migraines, but in the recent years they have gotten worse and I would like (and need) to learn more about migraine headaches.
Treatments
- Acupuncture Somewhat Helpful
- It takes the pain down a few pegs - but I was told it was more for long term prevention. Such as instead of getting a migraine that is on the scale of 10 I would get one that is on the scale of 6. It has worked thus far.
- Aspirin Not Working
- Avoid Certain Foods / Chemicals Working / Worked
- This really helps
- Caffeine Somewhat Helpful
- Depends on what type of migraine I have - sometimes it makes it worse
- Excedrin Somewhat Helpful
- Helps sometimes
- Fioricet Working / Worked
- Works great with mobic, only thing that works for me.
- Imitrex Not Working
- Severely allergic to
- Magnesium Working / Worked
- Works at 600 mg for me, helps abort them.
- Relpax Not Working
- Allergic to
- Topamax Not Working
- Caused severe depression
- Tylenol Somewhat Helpful
- Works when the migraine is not too bad - maybe 20% of the time
- Verapamil Not Working
- side effects were terrible
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