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  • About Me

    Image of soulsister

    soulsister

    Female, 34, Married
    Somewhere in the South, USA
    Member since March 18

    • About Me

      I was misdiagnosed with fibromyalgia in January 2008, 13 years after my first symptoms and numerous doctor visits. I was diagnosed with sarcoidosis in May 2009, after I changed doctors and complained of symptoms that are not typically associated with fibro. I am being treated with prednisone and slowly being transitioned to methotrexate. Overall, I feel better than I have felt in 14 years. I do have some side effects from the medication that I have to deal with, but so far my improvement outweighs the side effects. I have a husband and daughter and I work full-time.

      I was misdiagnosed with fibromyalgia in January 2008, 13 years after my first symptoms and numerous doctor visits. I was diagnosed with sarcoidosis in May 2009, after I changed doctors and complained of symptoms that are not typically associated with fibro. I am being treated with prednisone and slowly being transitioned to methotrexate. Overall, I feel better than I have felt in 14 years. I do have some side effects from the medication that I have to deal with, but so far my improvement outweighs

    • Website

      http://speaksoulsister.blogspot.com/

    • Interests

      Enjoying family and friends; reading; watching movies; listening to music; designing/drawing floorplans for homes; interior design; researching consumer health information.

      Enjoying family and friends; reading; watching movies; listening to music; designing/drawing floorplans

  • Journal

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  • Hugbook

    Give soulsister a hug



    • Hug

      From MichelleGA July 24

      Hope you are doing well!!

    • Hug

      From CajunTiger April 24

      Hey, just wanted to send you HUGS and hope you are doing well today!!

    • Hug

      From kimmie42 April 15

      hi,sweetie u have been a blessing to me too. it makes me feel good to know that i can make a difference in some ones life. hang in there i with u all the way. remember, u r not alone we are all in this together. love ya here is a hug for u u deserve it.

    • Hug

      From kimmie42 April 14

      sorry boy do i feel stuipd i forgot that u do have fibro sorry can u forgive me. lol

    • Hug

      From kimmie42 April 14

      i forgot have they tested u for fibro u have all the signs of it. take care love ya keep in touch

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Mar 28, 10 124 more days.
  • Support Groups

    • Close Sarcoidosis

      I was diagnosed with fibromyalgia in January 2008. After symptoms became uncharacteristic for that illness, I changed docs and recently was told by new doc that sarcoidosis is tentative new diagnosis, until chest x-ray and biopsy are complete. I would like to learn more about this condition from others.

      Treatments

      Prednisone Too Soon to Tell
      I've been on prednisone for 2 days, so it's way too soon to tell. but, so far side effects are mostly swelling. i'm very scared by diagnosis, so other things, like rapid heart beat, higher than normal blood pressure may be from anxiety.
  • Friends


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