CheshireKat

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  From alielectric August 22

  Hey, Its nice to meet you. Thank you so much for all of the information. I am trying to decide if I want to get the test done in tucson or scottsdale. I live in Gilbert so either way its a drive. How long did the test take? Were there multiple parts? I hope that you are doing well.
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  From Mamob August 6

  I write many things but i am not sure what I wrote that you are talking a bout
  please tell me what it was that was beautiful . That I may have written

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  From cathyw2244 April 13

  Congrats!

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  From ammc April 13

  yay!! that is so exciting!!! please tell her congrats for me!! :)

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  From cathyw2244 April 12

  CheshireKat, Whew! We made it. There were only a couple of tornado's that touched down but not here, near us, but not here, thank God! We are just finding out about HD in the family within the last few years so we did not know about it back then when I got pregnant. That is what usually happens but now they know more about it. My father-n-law has it. His # is 40 so the doc said he just barely has it but he does have it. He is around 80 now. He fell and had a brain hemorage so they had to do two surgeries to stop the bleeding. He did ok on the first one but the second one left him totally dependent on my mother-in-law. It happened two years ago as of January. Believe it or not, he was walking, talking, caring for himself until then. He started showing symptoms around mid 50's. He stopped drinking and the movements(chorea) started. It was the weirdest thing. Anyway he worked for years with it, then retired for about 10 to 15 until he fell. We were blessed. Like I said, other than the movements, the HD really wasn't that bad although the movements were. He is in late stages now along with they way the surgery left him. He got several wrong diagnosises until they did the test. Now, they think a brother has it but he was first diagnoised with Parkinson's. There is another brother, who we also think has it too,he is in a nursing home and their family has had all kind of problems. There is a sister living and one other brother who is deceased. It runs on the father's, mother's, side of the my husband's family and they also have confirmation of it. It is just now coming full circle and we are all realizing what we too might be facing. My father-in-law was always so short and ill with everyone. He was withdrawn socially and very quiet until he drank, lol, He drank really bad, until he started going to church and that is when he quit drinking and the movements started right away. He said he didn't want to drink, but the drinking calmed him. He always felt nervous, on the edge. The doc says that is very common. My husband and daughter say the same thing. My husband quit drinking when we married, (32 years ago) I told him I did not want to raise children in that, life is hard enough, so we never drank in front of her, ever, but she has started, just socially, she says. She never drank until recently that we know of. My husband and daughter are showing signs so I am worried but my sister-in-law and mother-in-law don't and won't talk about it and don't think they have it. I don't think the s-n-law has it, she and her kids don't act like my husband and daughter do. My daughter is 23 and is really making bad choices which is so out of character for her. She was an A/B student, never got into trouble, poplular, excelled in softball and went to college on a partial scholarship, but she is not the same sweet kid she was. Her whole character has changed! I can't help but to wonder if it could be affecting her cognitive thinking and that is why she is making poor choices. She was always so very smart! My husband is the same way, and I have always had to push both of them. Neither show any initiative or dreams. They both just want to be left alone in their own little world. Anyway, I love her, and my husband, and I am having to trust in God more than ever before. My family is pretty much gone and the sibllings don't understand. My in-laws only talk about it sometimes, and on rare occasions then. They don't won't people here to know it because it could hurt us with insurance, jobs, friends, relationships, etc. I talk to God alot lately. Like I said, that is where I get my strength. I would love for my daughter to have my grandchildren but I don't know if she could handle kids when she can't take care of herself right now! Let alone the HD too! Five years ago I would not have been saying this and she was not the same person then that she is now. I know something is going on. I know you will make the right choices for you and only you can do that. I don't know if this hurt's or helps you. I would have hated not to have been able to have a child and miss that blessing, but, I don't know that I want my daughter to pass if on if she has it. I don't think I could bare it! I know HD can be much worse than what we have experienced with my f-n-law. I just know God is giving me what I need, strength. Even though she was mine for 23 years, she has always been God's first. That is the way I have to think about it. He gave me what I needed, not what I wanted but he is getting me through it. I know some people are far worse off than me, that is another way I'm trying to look at it. Cancer, MS, sick kids, child abuse, etc. I don't know what I would do if I were you. You just have to do what is best for you and trust God in our decisions. Either way, he is there for you because I know for certain.

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