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LoneWolfe 
3:51pm
I didn't get cleared for surgery. I went thru this before; suppositely now there's a little 'condition' with my heart; "Left Ventricular Hypertrophy'...and yes, I know exactly what that is, and no, I've not ever had HBP, but nothing that can't be managed with meds hopefully (yep, more pills :-(... and I said to Dr S. that I don't want anything to delay the NSS (surgery). She was very nice; but of course wouldn't clear me without the additonal bloodwork and stress test. So, tomorrow they'll make a pincushion out of me, and I should be able to find out when my next step is, i.e. the stress test, and I suppose that will be with contrast too (gotta love it!)...yuk....
I cried, just from the frustration; nothing about ANY of this has been easy, but I'm hanging tough...I think I'll watch a John Wayne movie for inspiration on that.
Comments
Hi Lonewolfe,
I'm really sorry to hear that they canceled your surgery, boy can i relate to how you feel, Tim's first surgery date was canceled too Sept 17th, his was canceled while he was all ready to be moved into the O.R. also due to a possible cardiac problem, so he also had to have cardiac ulta sound, along with a few other tests which all came out neg..The surgeon promised to schedule the test right after he told me he canceled it and why..I called him the following Monday and he specfically told me he'd do it right away, then went off to a medical conference the rest of the week, well i continued to call and after 3 weeks of trying to get to him, the oncologist ordered the tests...They booked him for an Oct 21st date, which they canceled and never informed us about the date, in the first place, due to the head of Urology had a surprise meeting, i found that out accidently thru the oncologists office, when they told me he was on the O.R. schedule 2 days before i called, and i told them he couldn't of been he was sitting right here with me boy was i angry and when i think back at that poor surgeons secretary that day i went off on her, i certainly wouldn't of wanted to be her, i was so mad..So they finally put Tim on a cancelation schedule and after me calling the O.R. booking nurse twice a week, for weeks they finally got him in Nov 17th..It was a real fiasco, the only reason we staywed with the surgeon was he was the best and he really knew his stuff.. After Tim had had the surgery when i took Tim home after 4 days, i swore that i'd never go back there again..I now know it wasn't the hospital, Tim couldn't of been in better hands it's just the hospital treated way to many patients, people come from all over Massachusettes just to see a doctor there..I know this all isn't easy for you, and you being the patient, all you want is to get this over with...I know when we first got the d/x, how hard it was for me, let alone Tim and people like you, who have this disease, my heart goes out to you all..The reason i tolds you this story, i feel there has to be a reason for everything, and i like you trust in God, and i now know there had to be reasons for these things to happen... I feel terrible that i acted out on the wrong people for the doctor not keeping up with his patient load, but all i had in my mind was Tim's welfare, and just getting that primary tumor out, it had already invaded his adrenal gland, luymph's and at that time it being in his lungs, we didn't know where else.. Sheer panic, and being so new to all this, half the time i wasn't sure what i was doing..I am so glad you wrote a journal entry, i have written so many journal entries and thats what got me thru the tough times when i just thought i couldn't go on living with my feelings and keeping them inside any longer, people here took me by my hand and led me to where i am today...Tim and i are living today with mrcc, as normal as one can,it doesn't contol our lives anymore, especially mine..I know this is long winded comment, i just wanted you to know that you are not alone, if you ever need to talk, please feel free to...
Becca Anne
Beccaanne