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Monkeymom3 
12:10am Thursday
This is Mr. MM3 again. I have an update on MM3 and honestly we’re a bit stumped. I’m hoping you folks can provide some guidance. After surgery on Tuesday MM3 was doing much better. Although in pain from her incisions it seemed her pressure was under control and her head pain had been reduced greatly. We noticed some body ticks as she would fall asleep but we were told more than likely this was a side effect of the anesthesia and the surgery and this would dissipate over time. After a few days these ticks had become worse. They only appeared as she was falling asleep would start out mild, but after about 10 minutes her arms would flail or her body would jerk until she was awoken. She described it as that sensation of falling as you drift off to sleep. The lack of sleep and the high amounts of pain medications have made it very hard for her to focus. She is almost constantly in a twilight state and jumps in an out of what’s really going on and things that are happening in her brief dreams. We’ll be talking about how she’s feeling one moment and then just as quickly she’ll get very agitated about not turning in paperwork for a nonexistent fund raiser or the state of the kitchen at home when we’re 700 miles away. I’ve dismissed this all to medication side effects.
Sunday we called the doctor to see if there was anything they could recommend to trying to reduce their frequency. Lack of sleep is becoming a major issue. They asked her to come in to perform some tests. It was decided to reduce the amount of flow from her shunt since low pressure headaches seem to be common. This morning the ticks and spasms have increased. She scheduled to go back to the hospital for some CAT Scans and EKG’s. Turning to you folks, have any of you heard of anything like this happening with shunt surgery? Could this just be medication side effects?
Thanks
Comments
I guess I would question why they have her on so many meds. After my surgery I was released the next day with only 24 vicodin pills. I still have some left And it was 7 weeks ago.
TJRasta
Mr MM3, not sure what Khrys asked you to do and maybe you are not familiar with this site but rather than making an entry in the journal area, I believe you will get better response if you just post in the PTC discussion group. this journal can only be veiwed by those that Khrys has listed as her friends on this site vs everyone in the PTC group. Hope this helps you get more feedback and I hope Khrys starts feeling better soon.
TJ
TJRasta
Mr.MM3
I haven't had a shunt put in but I have had most of those things occur due to medication. Pain medications and muscle relaxers. Muscle relaxers cause my body to jerk, particularly my legs. Also coming off of narcotics cause some terrible- terrible things to happen to the body. I do hope it is just the medication, if she was fine the following day i would think it is the medication.
I hope you guys figure everything out soon and she can get back some normalcy in her life.
I pray she will be feeling better soon.
Betty!
Betty74
Hey Mr.MM3
I have an lp shunt not a vp shunt but I had the problems with the sharp jerking. That is exactly how I felt. Like I was waking up from falling or something. Sometimes I would just be sitting there watching tv and then all of sudden I would start doing some sharp jerking. I had my shunt on July 27 and I no longer jerk anymore. It did go a way after some time. I hope she is getting to feeling better and you are able to get it all figured out.
Britty Kae
Brittykae
Hi Mr. MM3, I work in hospital's and many people have dilerium from pain meds, either too much or just a weird reaction they have from them, I don't know about the ticks, I know she has a hx of seizures and I have read from people that had a VP shunt that the brain reacts that way, but her Dr's would know if it was a seizure or not.
I had months of Low pressure headaches from a shunt that didn't work right and I didn't have those tick or not sleeping symptoms, sorry I'm not much help, please keep us posted and tell MM3 she is in my prayers. BLessings, Jazzy
JazzyO