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About Me
noneareleft
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Recent Activity
November 16
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noneareleft and fireinmydesire4life are now friends 3:48pm
November 7
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noneareleft gave fireinmydesire4life a high five 12:27pm
You 'da woman!…
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Journal
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Hugbook
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Thumbs Up
thanks, you're pretty amazing yourself! have a good one, friend! ;-)
Miss You
Miss ya my friend,
I will write ya tomorrow... life's been crazy here lately and Iv'e started work again... I will email ya tomorrow..
Sharon xxxx
Ray of Sunshine
Thanks
Thanks for the chicken soup...it is one of my favorite comfort foods & comfort is something I really really need now! Actually, I made a huge batch of homemade chicken noodle soup on Saturday & I'm sending you a bowl in this message!! LOL Having to go through yesterday's CINE-MRI was a very negative experience (I'll be writing about it in my journal soon, still waiting for my blood pressure to go down because the whole day was so frustrating)so thanks for thinking about me!!! :-) ***Jean
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Hug
Well, here it is Sun. & I'm on my patio trying to soak up some Vitamin D, but Mother Nature is playing peek-a-boo with the sun & clouds...guess I'll have to stay on the 50,000mg Vit D once a week a while longer. Thanks for thinking about me & I'll keep you posted after my CINE-MRI tomorrow. Keep the faith... ***Jean
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Photos
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Support Groups
Close Lyme Disease
Dr. still testing me. Had positive WB IgM bands 23,41 whatever that means. Also had EVB positive, said I probably have mono. Unwell and seeking answers. Why report me to CDC if I don't have Lyme? Puzzled.
Treatments
- Doxycycline Working / Worked
- 14 days. Felt awful while taking this.
Close Arnold-Chiari Malformation
Chiari Type I Shunts, Diamox High ICP, Ehlers-Danlos
Open Ehlers-Danlos Syndrome
Child and nephew w/EDS and complications: skeletal and neurological.
Open Hysterectomy
hysterectomy advised due to fibroids
