-
About Me
Berthe
-
About Me
Sorry for the broken english : I'm french. I'm 50 years old, diagnostic for acromegaly on spring 2008, followed by surgery. Half the microadenoma is still there. It was a choc to discover I had a desease for ever. Medical care doesn't include the psychologic dimension of the desease, which is not small. As my Endo said "What are you complaining for, you are not in a wheel chair !". Sometimes the wheel chair is hidden in the head and it is not confortable. The blogs and support groups are VERY helpfull : thank you to all the participants. Didn't begin any med treatement. Surgery was an easy decision, med for ever is something I can't deal with until now but I do regular checkings at hospital. Trying natural ways to improve (nutrition...) and it does help a lot. Out of the puffy face, most other effects disapered. Also began a long inquiery to try to find out what happened BEFORE the adenoma (the causes), as scientific responses are mostly around the GH. Have no idea if it will be succesfull, but the proverb says "The only lost battles are those we didn't fight". And it keeps mind on a positive attitude. Wanted to add something about my social life and job, but for the last year, wasn't very active !
Sorry for the broken english : I'm french. I'm 50 years old, diagnostic for acromegaly on spring 2008, followed by surgery. Half the microadenoma is still there. It was a choc to discover I had a desease for ever. Medical care doesn't include the psychologic dimension of the desease, which is not small. As my Endo said "What are you complaining for, you are not in a wheel chair !". Sometimes the wheel chair is hidden in the head and it is not confortable. The blogs and support groups are VERY helpfull
-
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
Berthe hasn’t written any journal entries yet. -
Hugbook
Flower
Bonjour Berthe et bienvenue. Comme a dit Trena je parle français et CoolCat aussi, mais votre anglais n'est pas mal du tout. C'est triste de devoir nous rencontrer sous ces circonstances, mais je suis très contente d'avoir trouvé ce site. J'espère que vous le trouverez un bon appui aussi. For the non francophones: Hello Berthe and welcome. As Trina said, I speak French and CoolCat, too, but your English isn't bad at all. It's sad to have to meet under these circumstances, but I'm very happy to have found this site. I hope that you will find a good support, too. Rose
Hug
welcome....we started out as a small group and we have grown...we may all have acro but our experiences are all unique and our treatments paths our own...you will find lots of info...most of us have come to realize we must become informed patience to help our doctors make the best decisions with us...so read carefully ask questions oh yeah we can also have few members that are quiet playful!!! look out;) welcome
Hug
Bon jour, Berthe!! Se are sorry for the diagnosis, but welcome you aboard! You will find the most helpful and supportive people here. Ask questions and read journals and add your experiences good and bad. We are all learning and are trying to win the battle here!! You will find RoseBleue helpful as she is a French teacher and will be contacting you soon, I am sure!
Hug
Welcome to Daily Strength. We do have lots in common. You will find friends here, people that know what you are going through. Acromegaly is a terrible disease but I have found that we must be as positive as possible and take one day at the time. I admire you and your efforts to control acromegaly with your diet. I am going to try your suggestions. My endocrinologist did suggest a low carbohydrate diet as well. Welcome to our support group.
-
Photos
Berthe hasn’t uploaded any photos yet
-
Advertisement -
Support Groups
Close Depression
Berthe hasn’t entered any details for this support group.Close Acromegaly
Berthe hasn’t entered any details for this support group.
