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ambersneemie
Female, 54, ME
"I fought the policy and so far I'm ahead!!"
5:52pm, March 30, 2009
Journal Entry for July 13, 2009 Mood
Monday, July 13, 2009
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  1. ambersneemie

    Update July 13 makes four months since I even looked at this!! One I'm wicked busy and Two- I CAN'T remember where I've BEEN!! ;>} So on the walking thing. I have to down grade the time to take maybe a year instread! BUT the good news in this is that as of March 09 I have a power chair I FOUGHT to get and won. I had a regular physical, a mammo, a PT visit, and just last week, three months later, I saw my Neuro to renew my Copaxone and the total out come of all of these appointments is that I have NOTHING wrong with me!! Hows that figure? I'm actually healthy as a horse!! I have very little change in my perscription for my eyes, also! I have glasses but I don't wear them unless I want to see very small print and it's more comfortable to knit,etc, especially if it's getting dark in the room. I just can't walk!! But all the tests are negative, no worries and the PT and Neuro both say my tone is fine. I'm getting around more and now I have a junk scooter to ride outside and go over the bumpy lawn and do yard work with, and the clean power chair for inside use to get to house clean better and take care of myself more consistantly! My bathroom is easier to get in and out of and the shower set up makes it almost effortless to take one now. So in the long run I think things are looking good if not up and there's always room for improvement in the physical area anyway.
    The advocacy part is booming part way. I have my peer support person for MS and our phone conversations are quite uplifting. My medical part is dragging because that's a business and its slow starting. I also have an upcoming renewal for the licsence I have already and I need CE for that and I'm studying now. Hope that passes becuase even though I haven't done business in two years, it's still a chance that I can make referals and share in commisions to have a few avenues of income open to me.


    ambersneemie

I was just thinking.... Mood
Monday, March 30, 2009 | An Inspiring story
       I see the picture better now, and I am kind of proud to say that I have been pretty much trying to retrain my thoughts. It's been at least five years that I physically started doing stuff to that end, by reading books, doing the vision board cutouts, writing notes of affirmation on a scratch pad in the nightstand, and just in general catching myself, like poor posture, straightening out what is on my mind.   But like all good habits, diets, and exercise , I am weak at times and I let the "spam" in, and sometimes the subject line is in BOLD and your eyes catch it and you try to look away quickly, but you just CANT hit that delete or mute button FAST ENOUGH!!   Loads of happy thoughts today! In fact, here is one for you!!   My mother-in-law (yes, all the urban legends on that subject are true for me, too!!  :>}~ ) but sometimes she comes up with a gem!   Let me share my ATTRACTION of the day! I am in a wheel chair (partly by choice about 18 months ago) because it's quicker and I like moving fast. I don't have TIME to mess around with walkers and braces,etc. I was told by my mother-in-law years ago that there is a silver lining in every cloud. I took it as the platitude it usually is meant for and perhaps just in spite, tried to prove her wrong. I began LOOKING for those silver linings and eventually they just started falling on me!!   This morning I was hit with one, and I showed my gratitude for it by texting her and telling her how much I appreciated the lesson she had taught me so long ago, about twenty years!   My bird feeder is especially full lately, odd since this winter was pretty bad and they were scarce even with the variety of seeds and suet I had my hubby hang for me. I now have access to a living room with a large window to sit and observe (when I'm not focused on internet communities!!) This morning was so beautiful I opened and latched the storm door ajar to get the sun and fresh air in. I heard the birds in the feeder and looked up to see a veritable FRUIT BOWL of colors!! I was so excited I almost ran over my own feet trying to get to my phone or the camera to get a shot of it. The silver lining part is that had I been in my crutches or had my braces on, I would have made quite the commotion getting to the door to better see them. I was able to glide quietly up and take a few shots before a sudden sound from the street startled them off!   So, there is the "rest of the story" and I was struck by the fact that this is one of those moments you should commit to memory to fill up those empty spots that collect the flotsam and jetsam that floats around from some careless person who let that pesky negative energy go!!   Yours in sunshine!MH   
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Accountable to my Goals Mood
Monday, March 30, 2009 | A General Update story

For the MS first part: 

Today I got a call from the New York Upstate Chapter to see if I was still interested in becoming a Peer Support member. Of course, I was excited. They said they'd call in the spring and I've been waiting for a couple weeks now. I have a class to train at the end of April and I'm on my way!

For the MS second part:

   This will be one of three things I intend to do as my part of becoming an advocate. I'm in line to talk to the Political Activist organizer and I also plan to find out if there is a protocol for addressing misinterpretations in the ADAA, and if not, to develop a system of my own that I can notify, monitor and modify the places I encounter in my usual travels that are not easily or at all accessible to me!

And in the Second Advocacy position:

     - as a Medical Billing Advocate, I have finished my program, but now await approval of my application and need income to pay for membership, permits, and the books I will use to conduct business.

As for goal two, to walk:

   I just started another series of physical therapy to address the tone in my right leg. I will have my chair cushion evaluated as it appears to interfere with my circulation and my feet swell frequently when I sit in it for extended time periods. I also have sit bone pain that gets bad enough to keep me from falling asleep at night and I will work on alleviating that. The theracycle has become a daily routine, but as of last nights running marathon, will address the fact that I may be on it too long or too fast as my legs don't seem to want to STOP moving once I'm done exercising them!~

Namaste

 
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March 2009
Mood Monday, 3/16

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