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  • About Me

    Image of magsd

    magsd

    Female
    IRL
    Member since March 7

    • About Me

      I have had a hard life pain wise but i would'nt have it any other way . The life you have makes the person you become and if things turned out differently i might'nt have my daughter today. I would love to chat to anyone who wants to get it touch.

      I have had a hard life pain wise but i would'nt have it any other way . The life you have makes the person you become and if things turned out differently i might'nt have my daughter today. I would love to chat to anyone who wants to get it touch.

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  • Journal

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  • Hugbook

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    • Hug

      From flchristi March 18

      Thanks for your support and kind message. I really am glad to have found this site and I know that together we can all help make a difference in our daily struggle with our pains and troubles. I cant wait to get to know you better, I am always here to lend an ear if you ever wanna just chat or need someone to blow off steam with. Lots of gentle hugs and blessings,Christine

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  • Support Groups

    • Close Neurofibromatosis

      i have schwannomatosis. Have had 11 spinal operations for tumors on the spine i have numerous yumors there at the moment and i'm on fentayl for pain

    • Close Chronic Pain

      i have schwannomatosis and have had 11 spinal operations . At the moment there's nothing that they can do except meds .

      Treatments

      Heat Not Working
      heat pads no help at all .. a real hot shower or bath can help sometimes
      Lyrica Working / Worked
      stopped after a while
      Morphine Working / Worked
      works well but have to keep changing the type after a while
      Nerve Blocks Not Working
      no good
      Neurontin Somewhat Helpful
      worked a little but not enough
      Oxycodone Working / Worked
      oxicontin and oxinorm worked for a while but then stopped
      TENS Not Working
      no good
  • Friends


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