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  • About Me

    Image of SupersidNZ

    SupersidNZ

    Male, 62
    Waitakere, NZL
    Member since March 4

    • About Me

      Living in New Zealand. Structural draughtperson. Married, 3 children, 2 grandchildren. Enjoy walking. Diagnosed mm 2001. VAD. ASCT 1 Dec 2001. ASCT 2 Aug 2008

      Living in New Zealand. Structural draughtperson. Married, 3 children, 2 grandchildren. Enjoy walking. Diagnosed mm 2001. VAD. ASCT 1 Dec 2001. ASCT 2 Aug 2008

    • Interests

      Walking. Watching sport on TV. Writing my blog. www.supersidnz.blogspot.com

      Walking. Watching sport on TV. Writing my blog. www.supersidnz.blogspot.com

  • Recent Activity

    November 9

    September 10

  • Journal

    • Sid's blog

      Mood March 27, 2009 4:15pm

      Blog started Jan 09. A big learning curve. Chose Google blogger as it is user friendly to set up and has good help information.

      Part 1 "The …

    Read Journal

  • Hugbook

    Give SupersidNZ a hug



    • I’m With You

      From SarahStarfish July 26

      Thank you for your information. I briefly checked out your blog and then got side tracked. I will finish it ASAP.

    • Ray of Sunshine

      From Poppycath July 21

      Thanks Syd and Myra! Your hug came at just the right moment -- I'm suffering from a horrible gut pain which seems to be aggrivated by bubbles of air moving through my intestine so therefore there are wrentching gut spasms which hurt like anything. I had a bone marrow last week and should have the results on the 5th of august -- hopefully they won't be too bad. The blood test is showing a paraprotein of 10 at the moment. What with a full skeletal survey and a renal ultra sound scheduled for next week, I should have a fairly clear picture by my next doctors visit but its daunting. So your hug brought me cheer and I really appreciated it. Cheers to both you and Myra, Cath

    • Flower

      From Poppycath June 16

      Hi Sid -- I had a look at your blog and am most impressed. Its well structured and well laid out -- very easy to read and to follow!! Congratulations!! Hope all is going well for you and Myra. Cheers, Cath

    • Thumbs Up

      From MelbaOz April 24

      Hi Sid, I read your message which has a lot of good advice. As I write this I am in hospital having had the transplant on 23rd April. So far its not too bad, mainly nausea, mouth problems, appetite and fatigue as you mentioned. Oh well lets see how it goes. Genelle

    • Hug

      From MelbaOz April 11

      Thanks for the offer of advice regarding the sct, it would be much appreciated although time is running out. I have read your blog so far, very interesting.

    Read Hugbook

  • Goals

    Progress

    25 %

    Goal End Date is Oct 1, 09 55 days ago.
  • Support Groups

    • Close Multiple Myeloma
      Stage: III

      Living in New Zealand. Diagnosed with MM Stage III IgG Kappa June 2001. VAD for 4 months ASCT #01 Dec 2001 Plateau stage. Sept 2007 plasmacytome left humerus requiring rodding. Relapse Oct 2007. ASCT#02 Aug 2008. Oct 2008 Lytic leision right humerus requiring rodding. Now in second plateau stage. Read my blog www.supersidnz.blogspot.com

      Treatments

      Aredia Working / Worked
      Flu like symptoms the first 2 times then no issues. Taking it monthly
      Dexamethasone Working / Worked
      With VAD. Sleep problems. Became verbally agressive.
      Morphine Working / Worked
      Bone pain from relapsed MM. Gave me a dry mouth and minor constipation. Constipation overcome by one Kiwifruit a day. Started taking morphine at the end of my Thalidomide period and it masked the peripheral neuropathy in my feet. Reduced the pain. Had withdrawal symptoms coming off it. Restless legs for 7 days, bad moods 1 day.
      Thalidomide Somewhat Helpful
      15 months from Jan 2007. 50mg. Peripheral neuropathy after 8 months. There needs to be more awareness of its side effects. More research into preventing peripheral neuropathy. Read more on my blog. www.supersidnz.blogspot.com
      VAD Working / Worked
      VAD for 4 Months June 2001. Reduced IgG from 80 to 20 Normal chemo side effects.
  • Friends


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