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About Me
jaylynn0304
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About Me
January 17, 2009 I had my son, a healthy, beautiful baby boy. Two weeks later I go and try to clean up my condo for the first time since having him, and I developed a 'funny' feeling in my left leg. It felt heavy, then it became swollen and red. I have read about DVT in my baby books, and so I called my OB-GYN. She advised me to go to the ER immediatly. So, I called my fiance and all three of us rushed to the hospital. My heart rate was very high, as was my BP...but they just took a cat-scan of my leg. It turned out normal. They took an xray of my chest....and then an u/s of my leg...all normal. After many hours the doc was almost ready to send me home, but he consulted with the vein surgeon first, who advised him to get a cat scan of my pelvis, and thank goodness, because that's where they found a 'massive' clot. I was scheduled for surgery the next day, where they went in my veins and put some clot busting drugs around my clot and installed a vena cava filter. At the hospital they admistered heparin and started me on coumadin. I could not eat, I could not walk, and the pain my leg was terrible. Even still, I was discharged two days later. It was so hard being home, I could not walk around, and I had a two week old that was being taken care of by my mom, my fiance's mom, and his grandmother. I still could not eat, and, 4 days later, I noticed a very red painful patch on my affected leg. I went back to the vein surgeon, who was shocked to see that I had more clots running up and down my entire left leg. My coumadin levels were at 14. Yes, 14! I did not understand Coumadin at the time or what the effects are of not eating while on Coumadin. So. After my second surgery to help break up the clots, (by the way, my doc then told me that my IVC filter would be permanent) they kept me in the hosp for 6 days to wean me off the Coumadin and start me on Lovenox. I was discharged and, even tho I still wouldn't be able to walk until a good month later, I felt markedly better. My appetite impoved, my whole body started to feel somewhat normal-ish. I had several blood tests taken in the hospital, two of which came back postive (Lupus and Prothrombin Gene Mutation) although the Lupus test will be redone when I am off the Coumadin (that can alter the test results, so I may really not have it.) So after a few months on Lovenox they switched me back to Coumadin, which I manage real well now (I did a LOT of research...) My levels are usually within the thereputic levels, which I am kind of proud of, haha. I work out regularly, I wear my compression stockings when I work, and my left leg is only one inch bigger than my right (you can hardly tell!) I am glad to join Daily Strength, it has helped me to listen to everyone's stories and to know that I am not alone.
January 17, 2009 I had my son, a healthy, beautiful baby boy. Two weeks later I go and try to clean up my condo for the first time since having him, and I developed a 'funny' feeling in my left leg. It felt heavy, then it became swollen and red. I have read about DVT in my baby books, and so I called my OB-GYN. She advised me to go to the ER immediatly. So, I called my fiance and all three of us rushed to the hospital. My heart rate was very high, as was my BP...but they just took a cat-scan of my
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1 discussion post
November 19
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jaylynn0304 wrote a discussion post in the Deep Vein Thrombosis (DVT) support group: Negative lupus anticoagulant. 11:57am
Just got my blood test back for lupus anticoaculant. It's negative! :) I only have the prothrombin gene…
May 18
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jaylynn0304 turned 26 12:00am
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ment to send you a hug not flowers. Your lucky day you got both!
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Suns up and it looks ok!
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Thanks for the comments....We did discuss some of this and I think she is developing a better understanding of what I'm going through. Hopefully we will both have it figured out shortly.
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Left a responce in the group. But wanted to say also Thank you for venting! sounds funny but I feel it helps you and others.
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I haven't done much/anything with this site yet, but I am sure going to now. You've been through so much...I have too. Out of the blue I had a period that would not stop, I bled for 65 days, heavy heavy, finally I fully dilated and blood poured from me like a hose at a fire, passing clots like tennis balls, they FINALLY gave me a transfusion.. but let me go still bleeding, so I had to get another the next week, they ignored my dvt symptoms... even tho I told them. Finally got a great obg, who found the dvt and somehow had to figure out how to thin my already strawberry soda looking blood, and do surgery and then thin it again. I got a hysterectomy. my periods had been fine before that, but my lungs had been itching for a few years. mold in my house. anyhow.... this was june 25, I had surgery. They told me 6 months for Coumadin also. I am now having very very very painful back spasms... which they gave me a drug for, but I remain having severe pain on one side... so bad that I can't inflate my lungs in the morning without extreme pain and spasms. An er doc some years back said I had a mass between my lung and my back. my primary doc doesn't seem to believe that or want to investigate. My gem of an obg told me to get another primary doc, that mine should have sent me to specialist way way sooner. Actually my primary never did until I demanded. Hard to advocate for yourself when your hurting and confused.
I understand your distrust of them and your fear of going off of Coumadin. My OBG said stick with the Coumadin for 6 months and then after that, no matter what they tell me... to take baby aspirin for the rest of my life.It sounds like that might be good advice for you also. Trust your gut and sadly, never relax all the way with a doctor. It seems to me they sent you home way too soon. They didn't come to me about it, but I figured out that I could get help.. home health help from the hospital. I was lucky I didn't have to try and deal with a newborn. Thats painful to hear. (HUG) So I got a helper who helped me do anything that I needed help with. While I sat with my feet up. I didn't have anything genetic that caused this, but I do have cfs/fm. And low blood volume is the biggest cause of DVT, I read. My brother had a DVT same side as mine, also no genetic reason and he got a double pulmonary emb. Almost died. He isn't on coumadin anymore though, he was on it a year. That was 10 years ago for him.
I know I have lots of hormone shifts as I heal. And I am going to muster up and demand an ultra sound on my back, in the area where it feels like something round is pushing on my muscle and hurts like someone shot me there.Oh and YAZ is a drug they tried to stop my bleeding, it made my left leg swell overnight, its evil and a big cause I am sure.
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