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  • About Me

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    stillgoingstrong

    USA
    Member since February 27

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  • Support Groups

    • Close Meniere's Disease

      I'm 45. I was diagnosed with Meniere's at 33. Kept it under control with low sodium diet and meclizine until last year. Had a severe downturn, lost a lot of weight (no appetite), and a great deal of my hearing (right side). I am still unstable a lot of days. Have been using the Meniett for more than a year, with low-dose Valium. Also trying an anti-inflammatory diet and accupuncture.

      Treatments

      Antivert Working / Worked
      I used it for several years until my most recent downturn.
      Low Salt Diet Somewhat Helpful
      Helped a tremendous amount when I was first diagnosed 13 years ago.
      Meniett Somewhat Helpful
      It is hard to tell if it is working because there are so many other variables. I do seem to notice more fullness/pressure when I miss using it.
      Valium Working / Worked
      A last resort for me. I hate taking it. It does help, but has dangerous side-effects. For example, if you have Meniere's in one ear, valium can make the balance components of the other ear become lazy.
      Anti-Inflammatory Diet Working / Worked
      Seems to help. No red meat no wheat no dairy etc. Basically an allergy elimination diet. Managing allergies seems to reduce the Menieres symptoms but will not cure it.

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