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  • About Me

    Image of Silverthorn

    Silverthorn

    Female, 35
    Westfield, AUS
    Member since February 26

    • About Me

      ok bout time i put a little more then one line. i am 34 going on 35 and i have been suffering with DDD and firbromyalgia for the last 10 years. after my first episode i went through all the usual stupidity and specialists and test and was eventually diagnosed 5 years later with fibromyalgia a condition i refused to accept. after the episosde started coming every 6 months after the end of the last one i went back insisting on more tests and eventually got diagnosed with DDD but was told by the fabulous doctor i now have that i probably also have the Fibromyalgia because not all my symptoms are consistant with DDD. i have a wonderful supportive partner and a house we are buying. i have been bedbound for about a year and have only recently seen some chance of going back to work but the future looks pretty bleak as the episodes are not only unexplainable but also for the most minor movement to become an episode. last time i ended up in hospital unable to get out of bed because i moved just wrong truying to get up and go to the bathroom. i have tried many jobs to accommodate this ridiculous situation and i am running out of options. my sympathy to all in different degrees of this horrible situation and i feel for you and send my best hopes and wishes.

      ok bout time i put a little more then one line. i am 34 going on 35 and i have been suffering with DDD and firbromyalgia for the last 10 years. after my first episode i went through all the usual stupidity and specialists and test and was eventually diagnosed 5 years later with fibromyalgia a condition i refused to accept. after the episosde started coming every 6 months after the end of the last one i went back insisting on more tests and eventually got diagnosed with DDD but was told by the fabulous

    • Interests

      i love reading and my DS which keeps me sane in waiting rooms. i recommend one to all with DDD or Fibromyalgia. i love music and apart from rap and the new type of rnb there is not much i won't listen to. i used to do art as sculpture but cannot manage that much for the sitting. i spend much time on the internet basicalluy fopr the company and to reach out to others.

      i love reading and my DS which keeps me sane in waiting rooms. i recommend one to all with DDD or Fibromyalgia.

  • Recent Activity

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  • Journal

    • Journal Entry for March 18, 2009

      Mood March 18, 2009 8:41pm

      well i haven't been on in a while.  almost like being on here is confirmation of the pain.  so silly i know but sometimes i just want …
    • Journal Entry for March 10, 2009

      Mood March 10, 2009 10:46pm

      i just feel tired today not sure if too much sleep or not enough.  i am slwoly getting through things and just looking at them not really seeing …
    • assessment

      Mood March 9, 2009 5:03pm

      well i am limited to 15 hours a week of work and i am not sure if that is going to happen anyway.  mind you have been offered a new job....why …
    • Journal Entry for March 7, 2009

      Mood March 7, 2009 11:21pm

      well seems i am still struggling to get my sleeping pattern back to something remotely resembling ordinary.  at the moment i feel like a vampire …
    • just another day

      Mood March 6, 2009 6:07am

      i have been so tired lately and sleeping excessively as a result and because of that have been waking up so tired still and very stiff due to staying …

    Read Journal

  • Hugbook

    Give Silverthorn a hug



    • I’m With You

      From Kimistry March 29

      I so hope you are feeling better today. It is really tempting to totally isolate yourself from everybody and everything. Just know I am thinking of you and sending best wishes for the coming week.

    • Hug

      From dvraynes March 16

      Hi just wanted to say I hope you are not in to much pain today and that I am thinking of ya !

    • High Five

      From dauniwan2006 March 8

      HEY HEY..NICE INTRO...WELCOME ABOARD...DAUN IN MISERY/ MISSOURI....

    • Superhero Status

      From highschoolStudent March 5

      ^_^ I CAN'T thank you enough for your help! with my research paper! A+ here i come!

    • Moment of Peace

      From Eeyow March 4

      thanks:)

    Read Hugbook

  • Support Groups

    • Close Diets & Weight Maintenance

      Treatments

      Eating Healthier Foods Somewhat Helpful
      i unfortunately crave due to depression so this is helping and makes me feel better but very hard for me not to stray
      Eat Less Somewhat Helpful
      with cravings and a tendency to splurge i have trouble cutting my portions down but am getting better
    • Close Chronic Pain

      i have DDD and Fibro myalgia. the DDD is worse in my lumbar region but also in thoracic and cervical mildly. i am 35 years old and have suffered from bad episodes with 6 months in between each for the last 10 years. recently have been bedridden for the last year after the most recent episode with no real positive outlook to go back to work.

      Treatments

      Chiropractic Adjustment Not Working
      not allowed by doc orders back too fragile
      Heat Working / Worked
      one of the few things that keeps the area happy and stops major aching and stiffness
      Meditation Working / Worked
      absolutely necessary to force my body from the top of my spine to the bottom to relax the muscles or i don't sleep
      Morphine Not Working
      never again unless absolutely necessary i don't like being a zombie
      Naproxen Working / Worked
      helps to reduce the muscle spasms to some degree
      Physical Therapy Working / Worked
      only good if the area is not to bad with the spasming
      TENS Not Working
      did absolutely nothing for me
    • Open Degenerative Disc Disease

      DDD with bad spasmodic episodes for the last 10 years am now 34 turning 35 in june. recently bedbound for about a year and trying desparately to get back to work but no real end in sight.

    • Open Psoriasis

      psoriasis caused by or being one of the symptoms of fibromyalgia

      Treatments

      Coal Tar Not Working
      didn't help at all and dried out my hair
    • Open Fibromyalgia

      diagnosed with Fibromyalgia before evidence of DDD but then docor confirmed fibro also in evidence as some of the symptoms not consistant with the DDD.

      Treatments

      Acupuncture Not Working
      gave me a headache put me in bed for a week
      Aqua Therapy Working / Worked
      love this the only thing that helps both
      Heat Working / Worked
      i consider this and rest the only solutions for me
      Morphine Not Working
      omg no don't want to be a zombie again
      TENS Not Working
      dis absolutely nothing
  • Friends


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