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  • About Me

    Image of stefany22m

    stefany22m

    Female, 23
    Enfield, CT, USA
    Member since February 25

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  • Support Groups

    • Close Ehlers-Danlos Syndrome

      Ever since I was little I could freakishly contort my body into weird positions, and I still should really be in Cirque Du Soleil. I started experiencing pain in my main joints, knees, hips, etc., when I was about 11. The everything started subluxing. They said i was "double jointed". The pain was a complication. I hurt everyday, everywhere. Everyone said I was too young, or I complained too much. Finally after I had my daughter, I saw someone who directed me to a genetics specialist.

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