Pains back up, Merry Go Round and Round
November 6, 2009 1:40am
Well, pain is going back up so much for the relief from the new meds. Nasty pain in left leg, left arm and in the temples of my head! Headaches …
mountainmom
1:25am Friday
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About Me
mountainmom
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About Me
I have been married 24 years, have two beautiful daughters, 20 and 12. I am deeply in love with my husband and have found that you can still fall deeper, there is no end to my feelings about him. I have given birth at home, lived out in the middle of nowhere as a homesteader, with only what we could grow or do to survive, and walked a different path through life than most. I enjoy life as it comes, and weather out the storms of life one at a time. This is the biggest storm I have ever had to endure, rsd and unrelenting pain, but I think I am getting a shelter up and surviving okay. I look forward to more sunny days in my mind, and continue to look for more ways to help my battered body cope..
I have been married 24 years, have two beautiful daughters, 20 and 12. I am deeply in love with my husband and have found that you can still fall deeper, there is no end to my feelings about him. I have given birth at home, lived out in the middle of nowhere as a homesteader, with only what we could grow or do to survive, and walked a different path through life than most. I enjoy life as it comes, and weather out the storms of life one at a time. This is the biggest storm I have ever had to endure,
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Interests
I love to take pictures of wildlife and the wilderness. My newest toy is a cannon dsl digital camera, and 300 m telescoping lense.I have always been drawn to the mountains, and wild places. I oil paint (badly but that's okay it's just for me), garden, read fantasy, science fiction, romance, and historical novels. I do crafts of all kinds when I can, retired those I can't right now like beading, jewelry making and knitting.I can, dry and freeze our garden produce and in general I find all kinds of ways to try to keep moving and learn to endure the pain.
I love to take pictures of wildlife and the wilderness. My newest toy is a cannon dsl digital camera,
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Recent Activity
Recently:
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1 hug received, 1 journal post, 1 hug given
Friday
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mountainmom wrote a journal entry: Pains back up, Merry Go Round and Round 1:40am
Well, pain is going back up so much for the relief from the new meds. Nasty pain in left leg, left arm…
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mountainmom updated their status 1:25am
pain flair up nasty stuff! NOT sure if it's the weather, snapping out my...…
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mountainmom changed their mood to Horrible 1:24am
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mountainmom gave MsBrandy74 a hug 1:14am
Hi Welcome to DS. I don't get on here as much as I used to because of the fall change in weather and…
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mountainmom and MsBrandy74 are now friends 1:09am
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Journal
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Life goes on
October 27, 2009 8:42pm
Life goes on, now a little quieter here at home. I have sucessfully quit morphine sulfate and started on oxycontin and norco to control my pain, …
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Good News or Bad News- Don't know yet....
October 14, 2009 6:00pm
I am not doing very well pain wise right now.
I think the Dr.'s are trying to kill me! lol.
Not really, but in all seriousness they …
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Another Day in Paridise
October 6, 2009 2:30am
Well, a few more day's have passed. The Last Two days have not been very good, but I still remember the one good day with hope! I am doing …
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Cool Relief, a Refreshing Change
October 4, 2009 1:41am
Well, Life here is a little better. Today was a good day, and I will willingly take every one of those I can get! Woke up dreaming, such a …
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Hugbook
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Prayer
I thanks you for just being my friend and wanting to help when you can I thank you for your understanding of pain I hope to get to know you more take care
Hug
Thanks for the hug! I really appreciate you keeping me in your thoughts. I am working on something that could be of great benefit to all of us that suffer from rsd. Wish me luck and if I am successful you will be the first to know. Gentle hugs from me. I hope to chat with you again soon.
Moment of Peace
Hello, I was just looking through the CP boards and you caught my attention. I see that you had an injury that seem to start you on your CP path, I was just wondering did they do MRI's of your spine?
I hope you are getting some good pain relief and are happy with your Dr. I'm very lucky in having a very compassionate Dr. I'm also unlucky in having a chronic degenerative disease that hit with a vengeance about 10 years ago and has been down hill ever since.
Good luck, stay in touch, if you like. Sincerely, Konnie
Hug
Thank you for your support. Sorry I have been gone & offline for quite awhile. Hope you are doing ok =]
Hug
Sending a big hug your way my friend. Hope you are okay. Please take care and always here for you.
Wendy
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Photos
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Support Groups
Close Reflex Sympathetic Dystrophy
In October 2007 I fell at work and injured my left wrist badly, after a long history of doctors, casts, and tests I had surgery in Nov 2008. Back in July one of the test showed Periheral sensory Nueropathy and my doctor did not think it was of concern, I have now been diagnosised with RSD in both arms.
Treatments
- Baclofen Working / Worked
- This is a fantastic help to the severe muscle spasms I was having.
- Cymbalta Not Working
- Cymbalta has worked the best to give me a little help with the horrible burning! I however have now been taken off of it due to severe side effects involving vision, hearing and headaches
- Heat Working / Worked
- spa works the best, but also use heating pad
- Hydrocodone Working / Worked
- worked great for awhile by itself, now use just for break through pain and it is doing okay.
- Ibuprofen Working / Worked
- I take 800 mg 3 times a day, perscription strength, and it helps with the swelling in my brain caused by irritated nerve path ways
- Lidoderm Working / Worked
- works well for helping stand wearing a removable cast on my left arm that has RSD. Learned however not to place on site RSD started or it would make it worse.
- Miralax Working / Worked
- wonderful addition for this pesty side effect
- Morphine Not Working
- turns out the ms-contin is morphine sulfate, I am allergic to sulfa and it had just enough in the tablets to slowly build up and cause lots of damage to whole body- was missed as allergic reaction because I did not have the typical rashes related to allergic reactions with this drug. Still don't know how much damage was done while taking this drug.
- Neurontin Not Working
- took for over 4 months, started with low dose then up to 1800 mg. Bad side effects so now I am being weaned off of them and watched carefully due to extreme swelling in legs and feet. I also could not stay awake or stay asleep on this high of a dose. However I know it was doing something because burning/sharp stabs/ severe reaction to touch is back
- TENS Working / Worked
- while I can not stand this unit on the site of RSD beginning ( my wrist) except while in the car, it really helps to stop the muscle spasms in my upper arm, and neck thus reducing some of my head aches, or lessing the intensity of them. I also use it in the car because I can't stand the vibration felt through my wrist
- Oxycodone Too Soon to Tell
- replacing morphine but dr going very slow at low dose that itsnt helping pain much
- St. John\'s Wort Working / Worked
- since I could not use the standard pharmacitical drugs we are trying natures rememdy which they are based on and so far it appears to be helping
Close Chronic Pain
Just diagnosis a few weeks ago for RSD, taking a chronic pain management course through a book, and thought it would be nice to hear, talk, and review all this with a support group. In constant horrible pain in left arm up shoulder to neck and starting in right hand too. Haven't found a whole lot yet that helps much....but it was nice to find out I am not going out of my mind...yet
Treatments
- Baclofen Working / Worked
- This is a fantastic help to the severe muscle spasms I was having.
- Heat Working / Worked
- spa works the best, but also use heating pad
- Hydrocodone Somewhat Helpful
- growing tolerant now only use for break through pain
- Ibuprofen Working / Worked
- I take 800 mg 3 times a day, perscription strenght, and it helps with the swelling in my brain caused by irritated nerve path ways
- Lidoderm Somewhat Helpful
- works well for helping stand wearing a removable cast on my left arm that has RSD. Learned however not to place on site RSD started or it would make it worse.
- Meditation Somewhat Helpful
- only works if you are in a situation where you can meditate, and if the pain isn't so strong you can not ignore it
- Miralax Working / Worked
- wonderful addition for this pesty side effect
- Morphine Not Working
- Neurontin Not Working
- worked dosage up to 1800 mg where it worked well but had nasty swelling issue and doctor is taking me completely off of it.
- TENS Working / Worked
- while I can not stand this unit on the site of RSD beginning ( my wrist) except while in the car, it really helps to stop the muscle spasms in my upper arm, and neck thus reducing some of my head aches, or lessing the intensity of them. I also use it in the car because I can't stand the vibration felt through my wrist
