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CherylTrav 
HI, I am new to GPS. My son is in the ICU recovering from this disease. I am looking for what could be happening long term.We know he will need a Rheumotologist and will need to be careful but I can not find anything long term. The dcotors stopped the progression of his disease before it affected his kidneys. It was in the lungs only. We have been down a long road and almost lost him. We are not starting to get a foothold on life again as parents and trying to relax as he is alert and on a trach. I am hoping to find someone similar to him that can help us and when he gets out of the hospital we can switch him to the website and he can search when he has questions.
