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About Me
fkatt45
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About Me
Recently lost my husband to a rare disease "Myasthenia Gravis". He was diagnosed 4 years ago (late in the game)and spent the last 3 months in ICU becoming life threatening. I Spent 45 years married to the love of my life. Freddy was 69 when he passed. He also had pagets bone disease for 25 years. I am here for support and eventually to give support once I get passed the period I am in. God Bless to all~
Recently lost my husband to a rare disease "Myasthenia Gravis". He was diagnosed 4 years ago (late in the game)and spent the last 3 months in ICU becoming life threatening. I Spent 45 years married to the love of my life. Freddy was 69 when he passed. He also had pagets bone disease for 25 years. I am here for support and eventually to give support once I get passed the period I am in. God Bless to all~
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Interests
Taking care of my Yorkies and spending time with my family. Want to continue to work with the Myasthenia Gravis Foundation and help others with this Disease.
Taking care of my Yorkies and spending time with my family. Want to continue to work with the Myasthenia
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Journal
fkatt45 hasn’t written any journal entries yet. -
Hugbook
Hug
Nothing you said upset me, nor do I think that you ever could. I will go into remission, I don't care what they say. I can't stay on these meds forever and I know a little about natural healing. Those are the things that I have to tell myself especially when I'm so tired all I can do is lay down. I have to realize things don't happen overnight and that patience thing is not so easy on this darn prednisone. I know that it is helping me, but it is also making me a little nuts. I read my last journal entry and felt that I sounded a little nutty. I also opted out of the IVIG treatments since I have lupus also and I didn't want to give it a chance to rear it's ugly head by the port addition. Maybe that was a bad decision, but I think I made the best for my lifestyle. Any chance lupus can find a place for inflammation. . . My family has been great but I still think my husband feels like I'm faking it sometimes even when he heard the neuro say that I had the worst test results out of 300 people. That could just be my guilt speaking. I used to do more than humanly possible and get a rush out of completing every task perfectly. Not now. I hope that you find something to smile about today. If I have time, I will post a funny story in my journal, although my mom won't be happy about it. She asked if I was going to write about it and I told her, "Of course." Writing and cross stitch are the two loves that I can still do and I will continue to do so.
Ray of Sunshine
Sending you a HUG and wondering how u are.
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Ray of Sunshine
Sending you a HUG and wondering how u are.
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Hug
Kat: Thank you my new friend. It means a lot to me. More later...Sue
Hug
thanks.
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Photos
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Support Groups
Close Bereavement
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fkatt45 hasn’t entered any details for this support group.Open Widows & Widowers
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