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  • About Me

    Image of epi55

    epi55

    Female, 54
    Coram, NY, USA
    Member since February 21

    • About Me

      I have had Epilepsy since I was 11 Yrs Old. In April of 1999 I had the VNS. Since it did'nt help in controlling the seizures. I then had a Left Temporal Lobectomy in August of 2000 and since then I only had 3 -4 seizures. I worked 22 Yrs, for one agency and am now Retired.

      I have had Epilepsy since I was 11 Yrs Old. In April of 1999 I had the VNS. Since it did'nt help in controlling the seizures. I then had a Left Temporal Lobectomy in August of 2000 and since then I only had 3 -4 seizures. I worked 22 Yrs, for one agency and am now Retired.

    • Interests

      I enjoy taking walks, exercising, reading both magazines and a good book. Cat Lover, Advocating and Empowerment for People with Disabilities (Especially People with Epilepsy).

      I enjoy taking walks, exercising, reading both magazines and a good book. Cat Lover, Advocating and Empowerment

  • Recent Activity

    Recently:

    • 1 group discussion post

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Journal Entry for May 3, 2009

      Mood May 3, 2009 1:28am

       

      It's almost 8 months since I lost (euthanized) Puss Cat and I feell it's time for me to get a kitten. I'm feeling alot better with …

    • Missing my Puss Cat

      Mood March 25, 2009 6:17pm

      It's been over 6 months since My Puss Cat was euthanized(put to sleep).  She was in my life for 19 yrs. and was able to deal with all of the …

    • Feeling Myself Again

      Mood March 23, 2009 4:10pm

       I'm feeling alot  better today.

    • A Painful and Sad Day

      Mood March 22, 2009 2:29pm

      Today I'm finding it in being both a Painful and Sad day for me. Not only has it been 6 months since my Puss Cat had to be put to sleep. It also …

    Read Journal

  • Hugbook

    Give epi55 a hug



    • Hug

      From tattyhead184 October 28

      Just to say I hope you're having a good week.

    • Hug

      From tattyhead184 October 25

      Hi there. Thanks for the hug, it's great to have you as a friend.

    • Hug

      From mycat July 17

      have a great weekend

    • Flower

      From mycat July 15

      good morning sarah fresh flowers for a sweet lady sorry 2 hear about pusscat and your husband losing a pet can be hard I'm doing ok looks like another nice day hope your day is nice

    • Little Love

      From mycat July 12

      hi sarah I'm ok the weather is odd hope you had a nice weekend do you have any pets

    Read Hugbook

  • Support Groups

    • Close Epilepsy & Seizures

      Losing my father, the love of my life, at the age of 10 . I went through a lot of changes and at 11 I started having seizures. Mesial Temporal(Left Temporal Lobe) At the age of 30 I had (40% of my body burned from a seizure I had in shower. I had VNS in April,1999. Because it didn't help , August,2000 I had Left Temporal Lobectomy and in 81/2 yrs. I had only 3-4 seizures. I feel like a new oerson now that I'm more or less seizure free.

      Treatments

      Ativan Somewhat Helpful
      Tiredness
      Avoid Certain Foods / Chemicals Working / Worked
      Avoid Oranges & Grapefruits- Citrus Fruit
      Depakote Somewhat Helpful
      Dilantin Working / Worked
      I still take Dilantin and Lamictal which I find VERY HELPFUL
      Lamictal Working / Worked
      Neurontin Somewhat Helpful
      I took 19 pills a day . tetrogel helped in controlling seizure, but I had alot of intergestion .
      Phenobarbital Working / Worked
      How hyper I was!
      Surgery, Brain Working / Worked
      Very pleasured on the success rate of having Left Temporal Lobectomy
      Tegretol Somewhat Helpful
      Th Sun or any bright lights -eyes sensitive
      Topamax Working / Worked
      It helped control the seizures but how it effected my stomach
      Vagus nerve stimulation Somewhat Helpful
      It didn't help the seizures, but it did help me moods and personality
      Gabitril Somewhat Helpful
      Made me very tired.
    • Close GERD & Heartburn

      I am a 53 yr old young retiree whose gone though many obstacles and challenges in my life. I feel all the stress and heartache I had to deal with in my life is a big course of me having GERDS, HEARTBURN and Intergestion I . I feel being positive and having the FAITH I

      Treatments

      Antacids Working / Worked
      Avoid Certain Foods / Chemicals Working / Worked
      Prilosec Working / Worked
    • Open Anxiety

      I'm in my fifties and I've gone through Anxiety & Depression since I was 11 yrs. old since I started having epilepitic seizures. My life is alot beter now since I don't have to deal with Depressionlike I did when I was younger having to deal with so many changes in my life. Having to deal with Anxiety is another story. Being very strong minded & determinded is a very big facter in my life. I refuse in having to takeanymeds.Brething Ex. Meditaton,relaxation tech.being veryposit.having faith .

      Treatments

      BuSpar Working / Worked
      Did not take very long . HAD side effects where I was feeling Drugged up . Like I was in another world.
      Meditation Working / Worked
      A very Big Help In me Not having epileptic seizures. Also helped in relaxation and being able to go to sleep without having to take any thing.
      Positive Thinking Working / Worked
      I FEEL BEING VERY POSITIVE IS THE ANSWER. HAVING DETERMINATION AND DON'T GIVE UP NO MATTER HOW YOU FEEL !
      Trazodone Not Working
      When taking Trazodone I felt like I was being sedateed. I felt I was being druged up and was in another wodld
    • Open Widows & Widowers

      It's almost 15 Yrs since I lost my husband. It hasn't been easy. Especially since I've been through many obstacles and challenges since then. It's been hard lately since I had to have my Puss Cat who I had for 19 yrs. euthanized. she was everything to me .THE CHILD I NEVER HAD!

      Treatments

      Psychotherapy Working / Worked
      i FIND IT VERY HELPFUL!
    • Open Physical & Emotional Abuse

      I've gone through both emotional and physical abuse in my life. It hasn't been easy ! But all I went through has helped me so much in life and I feel is the reason how I became the strong minded and determined person I am today.

      Treatments

      Forgiveness Working / Worked
      I feel that the only way your are going to have peace of mind with yourself is to forgive. I've gone through both physical, emotional and verbal abuse with my marriage,on my job, with both friends and my family ,when I was growing up, as well as with Health Issues. What helped me is being able to deal with the situation and not let it get to me
      Music Working / Worked
      Instrumental ,classical,relaxation and oldies music helps me to unwind and relax.
      Psychotherapy Working / Worked
      I feel seeing a Counselor helps to vent and let out my frustrations, anger, and hurt I've gone through lie the Loss of My 19 yr. old cat.
      Talking Working / Worked
      Talking and letting out how you feeling helps.
      Writing Working / Worked
      Writing how you feel at that very moment helps in having to deal with a particular issue or situation at that very moment.
    • Open Pet Bereavement

      IN MEMORY PUSS CAT (JUNE,1989 - September,2009 It was in December ,2007 when MY PUSS CAT had a seizure. I never was so scared in my life . It's not that I never saw a seizure before since I have Epilepsy (seizures) . Then in Jan,2008 she was diagonised in having Kidney Failure. Puss Cat at the age of almost She almost lost her eyesight , lost her hearing&developCancer from Growth in mouth byteeth.She was euthanized almost 6monthsago &still hard at timesto deal with. When do I get another cat?

    • Open Loneliness

      Hi, it's been almost 8 months since I had to put my Puss Cat to sleep. She was in my life for 19 yrs.(since she was 4-6 wks. old. I lost my husband almost 15 yrs. ago and it did'nt bother me as much as when I lost my Puss Cat. I feel like a part of me is missing.

    • Open Stress Management

      Since I was a little girl, I've gone through many stresssful situations. To this day I find it very difficulty in having to deal with any kind of stress. I have Epilepsy and August of 2000 I had part of my brain (Left Temporal Lobectomy removed and find it that I get alot more overwhelmed (especially dealing with a stressful situation. situation.

      Treatments

      Music Working / Worked
      I find when playing Relaxation Music that it helps me to relax and unwind when having to deal with stressful situations. I alsofind thatbothWater (Ocean)& Classical Music is both relaxing and helps.
      Cognitive Behavioral Therapy Working / Worked
      I see a Social Worker who I find very helpful.
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