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About Me
peacequeen
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About Me
44 year old mother of 3 and 3 stepchildren, grandmother of 2. I sing with a gospel group and have a passion for photography.
44 year old mother of 3 and 3 stepchildren, grandmother of 2. I sing with a gospel group and have a passion for photography.
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Recent Activity
November 6
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peacequeen wrote a discussion post in the Polymyositis & Dermatomyositis support group: Please help 2:35am
I posted this in the advice area but I noticed no one visits there much so I decided to post here.I copied…
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peacequeen joined the Polymyositis & Dermatomyositis support group 1:45am
To help understand the diseases I have and to learn about symptoms.…
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peacequeen asked for advice: I'm desperate, please help in the Polymyositis & Dermatomyositis support group 1:34am
I have been diagnosed with a list of conditions, ailments and diseases. I'm seeing so many different…
February 25
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peacequeen turned 44 12:00am
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Journal
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Hugbook
Hug
Yes, a break from the stress would be very nice, we just went thru an extremely dificult month and it is starting to clear, finally. They found a nodule on my lung also and they found thymus tissue which I found out from my hemo should not be there. Another criteria for MG. I'm hoping that Duke will listen to all my symptoms, something my neuro just doesn't seem to have the time to do, uggh. Not all of them mesh with MG and I'm curious as to what else they could be. On the flip side, I don't want anymore dx's to deal with. It's a catch 22. Hope you have a great day and it's very nice to speak with you.
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I know how difficult all this is and I hope you get some solid answers soon. My rheumy suspects polymyositis or MS for me also, but the neurologist refuses to listen to him. He called her office right in front of me and went off. He actually turned purple and he is a very calm man. I asked if I could get a new neuro and he said that would be impossible since I have a dx that no other neuro would touch me. Have you had a CT scan yet? Dealing with neuro's is very difficult. Tell me your symptoms and you get to the second one and they stop you as if the answer just came to them. No more listening. She wouldn't even talk to me about what my rheumy said, just that she knew best. It's very frustrating!!!
Superhero Status
Thanks, I needed the hug, Here's one for the super hero in you.
Flower
Evan says "Love you, too Aunt K"
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Photos
peacequeen hasn’t uploaded any photos yet
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Support Groups
Close Myasthenia Gravis
I was diagnosed with MG in December 2008. I have overall muscle weakness including ocular symptoms. I'm not sure when the disease developed. My neuro thinks I need a Thymectomy but wants me to get a second opinion first. I'll be seeing my second neuro in march. I also have hypothyroid, fibromyalgia, osteomalacia, interstitial cystitis, glaucoma, degenerative disease, gerd, ibs
Treatments
- Mestinon Too Soon to Tell
- Was taking 360 mg per day, dr recentlychanged my dose. I'm still having difficulty breathing, but it does help some weakness. Only side effect is irregular bowel symptoms, from diarrhea to constipation.
Close Williams Syndrome
I have my own medical issues but I'm at the WS group for my great nephew,,my sweet pea
Open Acne
44 year old mom, oldest son has severe acne with cysts and foliculitis. He is undergoing different treatments till they find the right one for him.
Open Hypothyroidism
I have various medical problems. Hypothyroid is my earliest diagnosed condition. It's been a problem for me for about 20 years.
Treatments
- Synthroid Somewhat Helpful
- TSH is constantly on the move, making it difficult to stay on a steady dose for very long. In the process of seeing an endo and hopefully find out where the real problem lies.
Open Mental Challenged
My 9 year old son Christian has low iq, developmental delays, anxiety and mood disorder. He is changing meds at this time.
Open Common Variable Immunodeficiency
44 years old, suffering from hypothyroid, myasthenia gravis immune disorders
Open Polymyositis & Dermatomyositis
To help understand the diseases I have and to learn about symptoms.
