Journal Entry for August 22, 2009
August 22, 2009 8:24am
Progress
85 %
Goal End Date is Sep 23, 09 175 days ago.
DoaaS
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About Me
DoaaS
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About Me
37 yrs old mom of 3 kids..a hospital pharmacist in a neurosurgery hospital!!..ironically!!..i want to live and enjoy life with my family..i don't want to give up my battle against IIH..i want to beat it!!
37 yrs old mom of 3 kids..a hospital pharmacist in a neurosurgery hospital!!..ironically!!..i want to live and enjoy life with my family..i don't want to give up my battle against IIH..i want to beat it!!
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Interests
reading..movies..knitting with beads
reading..movies..knitting with beads
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Journal
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Hugbook
Flower
It is a very long story look up my postings you will see, but in a nut shell i have had 3 LP shunt revision in less than a year I developed a spinal tear so have low pressure headaches for 2mth then developed Charai sydrome where the brain sags into the spinal column was in hospitat 2/1- 2/9/10 they has to revise surgery 2 times in hospital then they had to crack head open take bone out so brain has room to swell if needed. They put a valve on my shunt but I will be gettting a cisternal pertineal shunt if this doesnt work out. And lastly might have to get tummy sugery cause fluid is building up in one area causung pain we will see later this week. Glad to hear you are ok and hope that things contine that way...
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Chocolate
hope you are well..
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Prayer
I am soooo glad to hear you are doing well. Spent the birthday ( thank you for the song!!) in pain. Looks like shunt #3 is not working well. Went to dr today and back on diamox, vicodin and blood pressure meds. Looking for another ns thnats why I am on tthe computer today.. Yes yes you keep in touch I understand if you dont answer right away when you are done with something you are done with it, I am that why tooo. TJrasta seens to be doing ok and I think Brooke is going to have another surgery. If you have facebook look me up Monique Rivers in Michigan. Ok looking forward to hearding from you. Must lay down now.Ta-Ta.
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Hug
hope u are well..
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Flower
No I didn't forget. Been having a rough time. Going to hospital in 4 hrs for shunt #3. Thing just alittle painful now. How are you doing? Will try 2 do better about keeping in touch, but must take more meds and lay down for a couple hrs.
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I have been diagnosed with IIH since last October!!..my headaches started long ago,but i always thought of different causes..since then i made 3 lumbar punctures which really relieved my symptoms..i'm also seeing an eye doctor as my vision worsened due to papillodema..last time i saw my doctor,he recommended a shunt??!!..i'm scared and terrified..the surgery isn't easy..my life is full of action as i'm a wife,a mother of 3 and i also work as a hospital pharmacist..so..what to do??
