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kellady
Female, 62, Farnborough, HAM, GBR
"Coping......just . Hard to watch my dear hubby try and fight this awful disease :("
6:53am Sunday
Journal Entry for November 22, 2009 Mood
Sunday, November 22, 2009 | A General Update story

 

I would so like to write a proper update....but am so tired. I spend a lot of time "wasting time" on Farm Games on FaceBook......it must seem very strange, but while I am doing that I dont think....and if I dont think i dont have to face how ill Mike has become :(

I dont want to talk about anything serious....'cos serious means thinking and thinking means I cry.

 

Our new home is a solace....it has been a good move and the flat is comfy and warm and safe.

Other than that I am just mostly so desperately sad.

 

Mike is on O2 24/7 .......so many drugs I cant always keep up ! and he is so poorly and tired and frustrated . 

it will be out 43rd Wedding Anniversary on Thursday next......I cant get the thought out of my head that it will be our last.

I am trying not to be pessimistic.....but in 1 year the change has been so total and devastating. We are now both house-bound as I dont like to leave him in case one of the coughing fits ends in his heart failing or something.

 

I am going to try and get back to this site ....it helps , and I forgot that.

 

Hugs to all of you......xxx

 

 

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Comments

  1. firelady

    If you get some relief from your daily life by playing games that is o.k. We all need something to relieve the stress of our lives. I have a face book page but I have not joined any of the games. I hope that you can enjoy your 43 rd anniversary a little. That is a major accomplishment now. Sending you lots of love and hugs... xoxo pat


    firelady

  2. oxfordns

    I have to parrott what Furelady has said....its all so true. I am on oxygen a lot also although I can go without it for a time. We marked our 44th anniversary in September......I know what you mean because I look all the special days in the year now as potentially the last. Its hard to think that way....we should look at the blessings over the years I guess......try to relax and play on the computer.....stress is hard to deal with.
    regards.....


    oxfordns

  3. MDLF

    I love the farm games on Face book too. They are mindless and that can really help. Hope Your trials with Mike get easier. I went through a lot of the same with my late husband. If you would like another neighbor Message me. Hugs Marlene


    MDLF

  4. digitinc

    Good to see you back! The Caretaker has it just as hard as the patient! It got to be too much for my wife and we separated, just when I needed her the most. You need to take some time for yourself! And maybe see about getting some help, so you can get some breaks. Could you get some home-health care help? Even if you just take some walks by yourself, at a local park, or just around the neighborhood. Take care of yourself as much as possible! It's important!

    They should have a caretaker support group on DS!

    Take care and best wishes!


    digitinc

  5. eillen

    I am so glad to see you are back posting agian. I'm so sorry that Mike has not improved.Try to make your 43rd anniversary a really happy and joyous one for the two of you. So sad things are not going well for you but you must keep up your strenght and take time for your self. Like Digi said it is important you need your own time to get your thoughts together and get some peace and tranquil time.I wishing the best for you and Mike. I will keep you both in my prayers.
    Love and Blessings,
    Nellie


    eillen

NEW HOME!!!!!!!!!!!! Mood
Friday, May 15, 2009 | A Breaking News story

 

 

I'm still in disbelief mode !! but we DO have a new home Laughing and should be on by 25th !!

 

We had put in a bid ages ago for a ground floor flat situated in a purpose built "house" style building.....heard nothing so just kept bidding for places and put our names down on some "over 55" complexes too...........THEN !! out of the blue we got a phone call inviting us to view the ground floor flat we thought had long gone !!

 

We nipped round to have a nosey anyway :) and we decided it was deffinitely what we want..........so I rang to see how we stood to actually getting it.........the lovely lady said " You've seen it and like it then ?"   " OK, it's yours "  !!!!!!!!!!!! You could here me whooping in Sturgis LOL

 

It's a weird system as we still have to go for the official viewing next Wednesday, but then we sign on Thursday and get the keys Laughing Sealed Laughing

 

We have permission to go round in the meantime and do some work in the garden to make it safe for Molly the Poodle lol

We have ordered carpet....( a very nice electrician was at the flat and let us go in and measure !)

So...............I may not be around for a while...but will be back asap :)

 

Thankyou all for you kind support as well......it has been such a help to vent here and get feedback from you dear people.

Hugs from Kath xx

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Comments

  1. ellengc

    Congratulations. I am so happy for you that you got all all that you wanted. Hugs.


    ellengc

  2. oxfordns

    Congratulataions. Hopefully life will be easier....


    oxfordns

  3. SmallFryO8

    Congratulations,I am Happy For You and Your Husband.Hope things will be better.


    SmallFryO8

  4. firelady

    Good news !!! Sending lots of love and hugs your way..


    firelady

  5. Rhea09

    WOW! Good things come to those who wait.
    This will give you a new lease on life, wonderful, wonderful news.
    Hugs to you both.
    Marie


    Rhea09

  6. beachnana

    So glad to hear the good news and the relief you must feel. Hopefully the move will help both of you. Best wishes from the States and you are still on my prayer list.


    beachnana

  7. mel1959

    Just checking in... have you gotten yourselves settled yet?


    mel1959

  8. babyhead

    Have been reading your journal. I'm thinking I have the same consultant as your husband from some of your posts.
    Hope your move is going well


    babyhead

  9. BreatheEasy

    HI sweetie. I know you wrote this awhile ago, but I hope all is well. congratulations. Love joann


    BreatheEasy

  10. MDLF

    Congratulations!!! Sorry I am just catching up on journals. Good luck with your move. Hugs Marlene


    MDLF

  11. BreatheEasy

    Getting worried about you. It has been a long time and I am concerned.
    Hugs! JoAnn


    BreatheEasy

Recovery ! Mood
Monday, April 20, 2009 | A General Update story

 

Spent most of yesterday asleep ! came on line to nosey now and then though :)

I get these flare-ups from time to time and there is no fighting them....just have to sleep them off......frustrating though .

 

Just waiting for the care nurse to come to do Mikes wash and shave....very strange feeling to have someone else do things, but I do know I cant keep on doing everything.

They have also got us down for Respite....where Mike will go to a care facility for a few days ( probably already said all this !!).......that will be more than strange and I am apprehensive for him. As he says though....it's no different from him being in hospital for a few days and a lot more comfortable !! Bless the man :)

 

Have hopes of news re. housing.......hope I'm not getting too optimistic. We do need to get moved and settled.

 

HUGS Kath

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Comments

  1. ellenb2

    Kath,
    I don't know what you mean by "flare ups", but I had to take an antianxiety medication sometimes to help me. Now I take it sometimes for the extreme grief and it really does help. Today would have been Jim's birthday, so it's a very bad day, but I'm back at work and that helps. The worst time's are at night. But they say time heals, I just wish that time was here already. Try the antianxiety med, go to the doctor... they'll help. Also Kath I started a Lung Disease group before I found this Pulmonary Fibrosis support group and a young woman joined that group. I'd like to steer her towards you. Your a great support and I'm sure she'd benefit from speaking to you. Can I tell her about you?
    Ellen


    ellenb2

  2. MDLF

    A little respite for you and a change a scene for him is a good thing. enjoy!!! HUgs Marlene


    MDLF

  3. Rhea09

    It will give you a few days to yourself, rest up and take things easy. My husband will not go into respite unfortunately. Hospice have repeatedly asked him so that I can have time off but he refuses.
    Hugs Marie


    Rhea09

  4. BreatheEasy

    Sending prayers and loves! Mike is an angel as are you! Love jOAnn


    BreatheEasy


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