Home again
November 17, 2009 1:36pm
I'm home from spinal fusion surgery after 3 weeks in a Rehab. Hosp. Now I have No One to assist me--I was used to 24-7 Nurse aid. I …
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Token
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About Me
Token
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About Me
Worked for county govt. in CA for 25yrs., retired on disbility to AZ in 2002.
Worked for county govt. in CA for 25yrs., retired on disbility to AZ in 2002.
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Recent Activity
Recently:
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1 journal post
Tuesday
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Token wrote a journal entry: Home again 1:36pm
I'm home from spinal fusion surgery after 3 weeks in a Rehab. Hosp. Now I have No One to --ist me--I…
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Token changed their mood to Bad 1:35pm
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Token changed their mood to Good 1:30pm
September 1
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Token turned 54 12:00am
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Journal
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Back problem
September 10, 2009 12:42pm
I finally have a surgery date (Oct.21) but it's Too Far Away-!! I suffer trying to walk -- my left leg hurts from the cyst in my …
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Walking better-?
August 12, 2009 1:31pm
I set a goal to Walk Better awhile back BUT I found out the CYST in my back is causing my walking problems...ha! So I won't meet my goal …
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Taking care of ME
August 3, 2009 2:30pm
It seems like We ALL have to Do Everything--UGH!! Even if we are "Dog Tired". I got a fasting LAB done last week = CBC with …
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Hugbook
Hug
Just read your journal entry and am so sorry you are in such pain. I pray the time passes quickly for you untill your surgery and that the procedure will help immensly.Suffering is never easy, but I hope this hug takes the edge off a little.
Good Luck
Thanks Token!!! Hope you have a wonderful day. This website is really cool! Its nice meet you and hope your feeling better.
Hug
Sorry, I forgot to leave a msg. I'm new & still looking around at things. I stayed up 'till midnite & regretted it. I'm having trouble uploading a photo. Etc., etc.
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Hi Token, Welcome to Daily Strength, there are lots of good support groups here and lots of really nice people that are more than willing to help with anything they can. I would like to invite you to a couple of groups but before I can do that we have to be friends. Look forward to hearing from you. Hugs Nancy
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Photos
Token hasn’t uploaded any photos yet
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Goals
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Support Groups
Close Multiple Sclerosis (MS)
Type: Seconday Progressive MSMS for 30yrs. a few flare-ups per year, but worked for 22yrs. MS got worse when I started taking medicine for it. Tried all but Copaxone. Now on Tysabri for almost 3 yrs.
Treatments
- Avonex Somewhat Helpful
- Took this for a couple years & developed neutralizing antibodies.
- Betaseron Somewhat Helpful
- Quit using it after 3 yrs.-got neutralizing antibodies.
- Neurontin Somewhat Helpful
- Took low dose only at bedtime for a few years, then quit because Ambien put me to sleep & I didn't feel any leg jerks.
- Novantrone Not Working
- Only took 2 treatments. Then my heart MUGA was not good.
- Physical Therapy Somewhat Helpful
- Go to P.T. every few years to revise exercise routine. I do exercises 6 days/week.
- Prednisone Somewhat Helpful
- See comments for Solumedrol.
- Provigil Working / Worked
- Only take it when I'm in a crying jag. Gets me out of depression - makes me feel like shopping-!
- Rebif Somewhat Helpful
- Took for 1 year, then switched to Tysabri.
- Solumedrol Somewhat Helpful
- Used to take it a couple times/yr. to shorten flare-ups. After 5 years of this, my bone scan is getting close to osteoporosis, so no more Solumedrol.
- Tysabri Working / Worked
- It's doing something good. Not as much as I'd like. Coming up to 3 years on it.
- Wellbutrin Not Working
- I was on Wellbutrin for a few months, but stopped as it did NOT stop my crying jags. Now I want to start it again. It gave me energy & a positive outlook, which I have lost.
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Groups
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Friends
