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About Me
Bamb00
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About Me
Self employed tool sharpener past 20 years or more. Veteran submariner. Passion for gardening and tea. Fairly good resiliance and attitude towards life and my disease. Looking at shutting down my shop and not being able to garden for a while for the stem cell process, quite the balancing act between trying to not burn healt care bridges and still take big bites out of life. Tom
Self employed tool sharpener past 20 years or more. Veteran submariner. Passion for gardening and tea. Fairly good resiliance and attitude towards life and my disease. Looking at shutting down my shop and not being able to garden for a while for the stem cell process, quite the balancing act between trying to not burn healt care bridges and still take big bites out of life. Tom
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Interests
Dances of Universal peace. Gardening Quality of life. Wasting time on the web German Shepherd dogs. Gong-Fu tea.
Dances of Universal peace. Gardening Quality of life. Wasting time on the web German Shepherd dogs. Gong-Fu
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Recent Activity
Recently:
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2 journal comments
Sunday
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Bamb00 commented on SarahStarfish’s journal entry Why is it NOW that time slows down? 2:14pm
Doing pretty well, bisphosphonates on Tuesday. Dancing tonight!…
Friday
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Bamb00 commented on SarahStarfish’s journal entry Why is it NOW that time slows down? 12:55pm
All I can tell you is that they want the least possible amount of myeloma cells in the cells they collect…
November 12
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Bamb00 commented on SarahStarfish’s journal entry Hurry up and wait... 3:04pm
Check up at Yale showed no obvious problems CBC is pretty much as expected, mild anemia. SPEP results…
November 11
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Bamb00 commented on SarahStarfish’s journal entry Hurry up and wait... 2:06pm
Hi Sarah Waiting for responses from doctors and hospitals sucks! Before I was admitted as a patient for…
November 6
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Journal
Bamb00 hasn’t written any journal entries yet. -
Hugbook
Thumbs Up
Thanks for the support, I will keep you posted.
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Superhero Status
Thank you! I really needed that.
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Celebration
No chemo? Fabulous! Keep on going and take care! Thanks for being here.
Good Luck
Good luck with your transplant in May Tom. I enjoy your messages and pieces of advice to others. All the best, Cath
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Photos
Bamb00 hasn’t uploaded any photos yet
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Support Groups
Close Multiple Myeloma
Multiple myeloma 5 course of velcade/dex and monthly zometa fairly good results . Male 54 no other real health issues
Treatments
- Dexamethasone Working / Worked
- This is the shut up and smile drug because if you are any kind of curmudgeon or cynical by nature look out! A few days without good sleep on the 4 days of 40mg and some tired leg muscles. Be extra kind to everyone or shut up and smile on this drug.
- Velcade Working / Worked
- Started round six yesterday as my treatment to get ready for the next phase the autologous stem cell transplant. Round five was a bit rougher than round four so I imagne that like most types of chemo it gets a little harder the longer you consume these poisons. Great response so far (near complete response) should bode well for the next things to come. Annoyng that they take 3 tries to start an IV, yesterday even bent a needle! Sliding veins, thicker blood, etc, -but as long as we walk out the door with the good stuff infused I'm game.
- Zometa Too Soon to Tell
- No lytic lesions entering treatment, preventative thus par and some anecdotal chemo effect according to the oncologists. First dose may feel like the flu for half a day or so. Maybe worse if you were never rough and tumble.
