Journal Entry for April 16, 2009
April 16, 2009 11:40am
I am lacking motivation and feel as if I have flu-like symptoms! Even my eyelids are sweating. I didn't know that was even possible! Living …
Pharmgirl 
10:46am, April 28, 2009
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About Me
Pharmgirl
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About Me
I am a proud mother of three lively boys. Currently, I have taken a leave of absence from my job to care for my mother. She has MDS, Refractory Anemia and Myelofibrosis.
I am a proud mother of three lively boys. Currently, I have taken a leave of absence from my job to care for my mother. She has MDS, Refractory Anemia and Myelofibrosis.
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Interests
I love being a Mom! I also couldn't live without music, art, beaches, photography and volunteering. I live in TN, and our State is called "The Volunteer State". ha ha. I fit right in. I live 20 miles from Graceland and enjoy our rich musical heritage and culture. I have also been involved with ChemoAngels, which has been a very rewarding experience. The other main passion in my life is organizing blood drives. We turn these donation events into parties! This idea came from my desperate need to find a way to help my Mother. She needs frequent blood transfusions. Since there is no cure for her disease, I started the blood drives in hopes of finding donors that had the same blood type as her. I found one! This person who is only 18 years old now gives directed donations just for my Mom. He said it meant so much to him to help give someone life. In my city we have one of the largest trauma centers in the Country and St. Jude Research Hospital is located here as well. Therefore, the need for blood and bone marrow donors greatly outweigh what our community donors could ever keep up with. Lifeblood (our local blood bank) has to rely on out of state resources to keep up with a continuous blood shortage. I have given so much blood that my Dr. ran a CBC and I now have Iron deficient anemia!
I love being a Mom! I also couldn't live without music, art, beaches, photography and volunteering. I
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Journal
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Update
March 16, 2009 11:03pm
Our Blood Drive was a success! It was a lot of fun too. We had the fastest pint olympics and I presented the top three with gold, silver and bronze …
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A little time off
March 16, 2009 11:02pm
The website turned out great and has been a big hit with friends and family. My mom finally caught a break and her energy has returned. She has been …
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A website for my Mom
February 12, 2009 3:36pm
Today I am making a Caring Bridge website for my mother. Since she cannot work now, she misses her co-workers and friends. She wants to stay in touch …
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Blood Drives for 2009-Myleoproliferative Disorders
February 11, 2009 11:21am
Please excuse my poor spelling, I just write and try not to worry over perfect grammar and spelling.
I am the chairperson of organizing …
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Hugbook
Hug
Thank you for your message of understanding and very good advice. You are truly someone I can relate to, and I'm glad I found you! And please know that you can talk to ME, as I will be here for you through this all as well! XoOXx Have a nice weekend!
Kiss
thanks for your support. I just dont think he understands the situation, Thinks by getting shots that that is all there is to it. I said it isnt that way it does progress.
Hug
thank you!
Rainbow
Pharmgirl, I just now found your message from February. I keep forgetting to look for messages & hugs, but I'll do better, I promise. Thanks for writing. I enjoy getting to know you.
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Flower
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Photos
Pharmgirl hasn’t uploaded any photos yet
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Support Groups
Close Myelodysplasia
My Mother has Myelofibrosis, Refractory anemia and Myleodyslasia. I am her only child and it's been a long journey so far.
Treatments
- Blood Transfusion Not Working
- Her blood transfusions are failing because she has had so many. Her spleen and liver are enlarged.
- Aranesp Somewhat Helpful
- Revlimid Too Soon to Tell
Close Thrombocytopenic Purpura
My mother has Myleofibrosis and MDS, thrombocytopenia and refractory anemia.
Treatments
- Revlimid Too Soon to Tell
