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  • About Me

    Image of PatH03

    PatH03

    Female, 54
    Charlotte, NC, USA
    Member since February 9

    • About Me

      I am 53yo female, a wife, mother and nurse as a profession. I am passionate about my family and reading. I have 2 grown daughters. I began having symptoms 3/07 and it took until 09/08 for a diagosis. My philosophy regarding my MG is I am an otherwise healthy woman with a chronic disease that I have to manage, which has made me look at a different way to do many things in my life. I try to look for the blessing of each day and stay in the positive.

      I am 53yo female, a wife, mother and nurse as a profession. I am passionate about my family and reading. I have 2 grown daughters. I began having symptoms 3/07 and it took until 09/08 for a diagosis. My philosophy regarding my MG is I am an otherwise healthy woman with a chronic disease that I have to manage, which has made me look at a different way to do many things in my life. I try to look for the blessing of each day and stay in the positive.

  • Recent Activity

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  • Journal

    • First Entry Feburary 10,2009

      Mood February 10, 2009 7:11am

      I began this journey over a year ago and it has been enlighting/frustrating/sad/ helpful/angery/ hopeless/ and probably every emotion known. It took …

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  • Goals

    Progress

    0 %

    Goal End Date is Feb 22, 09 277 days ago.

    Progress

    0 %

    Goal End Date is Feb 15, 09 284 days ago.
    Current Weight (Lbs)
    205.8
  • Support Groups

    • Close Myasthenia Gravis

      Hi All I began having symptoms 02/07 Dx in 09/08. I am married to wonderful man, have 2 grown dgts. and work full time as a RN. I love to read. I am glad to finally have a dx. and I do feel better than 6 mos. ago. My Neuro MD said it would take 9 mos. to get where he wanted me to be. I try daily to see the blessing. In my work, I see many that are so much worse. I vent to my hubby, but try to stay as positive. I am glad to have found this site to talk with people going through the same issues.

      Treatments

      IVIG Too Soon to Tell
      I had 3 days of treatment the first week of Jan. then 2 more days the first week of Feb. I could begin to feel a difference (mild) 3 weeks out. I had no side effects, except a mild reaction with the first dose.
      Mestinon Working / Worked
      It was working much better. I am on 90mg 4xdaily. The last month it doesn't seem to be quite as helpful but I certainly can tell a difference when I forget to take it. No side effects noted as of yet.
      Cellcept Too Soon to Tell
      I began cellcept on 1008. I am currently on 1000mg twice daily. It is to soon to know. My MD said it would take up to 9 months. The worst side effects is being more suseptible to infections. I have had bronchitis twice and a sinus infection since October.
      Prednisone Working / Worked
      I am currently on 30mg daily. I have been up to 40 when I get a respiratory infections. The worst side effect if irritability especially on long term and I have gained 15 lbs. YIKES
  • Friends


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