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janimal 
Last week I spoke to two caregivers from the Lymphoma Society on the telephone. They are part of a phone support group for caregivers. Both of their husbands had BMT 4 years ago. It was very helpful to hear from them a time frame for my husband Jim's recovery. They both stated that it was 2 years before their husbands went back to work full time. One stated it was 2.5 years for a normal immune system and the other said about 3yrs. Both stated that there is hope at the end of the tunnel and the process is long. They also remarked that their spouse's energy levels took almost 4 years to return to a normal state. However neither had GVHD and both had mud donors. I found that to be remarkable. Now I feel like my Jim is a baby in his recovery of 1 year. We are down to 10mg. of Medrol every other day. We are hoping to eventually be totally off the evil steroids (Medrol) all together and the prograf. Jim is also having IVIG treatments monthly to try to build his immune system. He is going to PT twice per week and to a Fitness trainer 2-3 times per week and is actually making his appointments. So we are on an upswing and hold our breath. We so appreciate the good days. That's all I know we are a team and are in this thing together. I truely understand the statement "for better or worse" these days. I am grateful I do not have to work and can take care of my husband. June 15th he will get his 2nd cateract surgery and will be able to read and will be able to work some we assume. Every day is truely a gift for all of us. Janimal
