Hope still
July 6, 2009 10:26am
It is ironic that my last journal was titled Hope. That is the word I have been struggling with lately. My husband Jim is having a back procedure as …
janimal
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About Me
janimal
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About Me
I am a massage therapist of 10 years, not practicing at the moment. My husband an attorney in employment discrimination for the plaintiff. I am the caretaker for my husband Jim, in photo who had a BMT on April 15, 2008 at MD Anderson in Houston. We live in New Orleans, LA with my 83 yr old mother and cockapoo Bella. Jim has 4 sons and I have one. Ages are 16, 19, 21, 23, 26.
I am a massage therapist of 10 years, not practicing at the moment. My husband an attorney in employment discrimination for the plaintiff. I am the caretaker for my husband Jim, in photo who had a BMT on April 15, 2008 at MD Anderson in Houston. We live in New Orleans, LA with my 83 yr old mother and cockapoo Bella. Jim has 4 sons and I have one. Ages are 16, 19, 21, 23, 26.
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Interests
Sharing the Gospel of Jesus Christ with others, cooking, gardening, planning parties, biking, swimming. I love people, all people, except when it comes to politicians it is hard.
Sharing the Gospel of Jesus Christ with others, cooking, gardening, planning parties, biking, swimming.
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Recent Activity
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Journal
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Hope
May 31, 2009 10:55am
Last week I spoke to two caregivers from the Lymphoma Society on the telephone. They are part of a phone support group for caregivers. Both of their …
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End of the World
March 27, 2009 1:56pm
I told my husband, Jim that I thought the end of the world was near. I explained how our govenment is taking God out of everything, kids can't …
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year one approaching
March 16, 2009 10:59pm
Well my husband's one year bone marrow transplant is approaching on April 15th. We are scheulded to go back to MD Anderson for all the one year …
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Angry
February 22, 2009 8:01am
Hi everyone, I guess I need some venting and forgiveness of self. Sometimes I get so angry that my husband is not well. I get so tired of watching …
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Hugbook
Hug
they gave me two shots a day for six days, I guess because my brother was six feet two, he passed away right after the bone marrow transplant, because the chemo ruined his liver and he caught a bacteria in the hospital, it is so sad, he was such a good, hard working, pure soul. I still cry every time I think about it, I mean it has only been a couple of months, but still, I just cant seem to beleive that he is gone, it really is a sucky ending to what could have been a wonderful story
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Hug
I really think they gave me too much, I threw up and it left bruises all over my tummy, I got two shots daily for a week, then the machine broke while it was taking the blood out, filtering the bone marrow and stem cells and then puts it back in on the other arm, that is why mine hurt, they apologized, I truly beleive they over dosed me on the neupogen too, getting flushed and vomiting are signs of overdosing. who knows. God is great, I would do it again and again, and would give anything to have my brother back
Superhero Status
Thank you for your response to my GVH post in the AML community!! Reading it felt so good :) *hugs* Hoping you and your hubby are well!
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Photos
janimal hasn’t uploaded any photos yet
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Support Groups
Close Acute Myelogenous Leukemia (AML)
My husband had MDS. He had an allogenic bone marrow transplant in April 08. We struggle daily with fatigue, evil medrol and many other drugs and GVHD off and on. Recently we learned that recovery is from 1-3 years. Hard to see the light at the end.
Treatments
- Bone Marrow Transplant Working / Worked
- Intense, still intense. Fatigue the worst and withdrawel form steroids. Quality of life could be worst. Bouts of GVHD. Eating can be hard from time to time. Caner free
