bigbeagle43's Journal

well, my stroke was caused by this thing called CNS vasculitis, which caused the blood vessels in my brain to become inflamed and cut off blood flow to parts of my brain, which in turn, caused the stroke(s)....

good news is, the cranial angiogram in february showed that the veins have gone back to normal and the MRI showed no new episodes of strokes...yay!

my rheumatologist doctor said that instead of the original 6 months of chemotherapy, he felt comfortable with just 4 months...that means that i am done with that!  yay!  and he also is decreasing my steroid dosage...so now, only 5 mg of prednisone/day...and after another month, i will go to every other day...

he seems to think that this was a "one time" episode...gosh, i hope so...i don't want to be living with the threat of this hanging over me...he said he thinks that it was caused by a virus...i asked him how did i get it...he said it was just one of those things...grrr..that just sucks...

so now, i am just trying to concentrate on my walking/balance issues and trying to get stronger so that i can bring my other son back home...i sure do miss him immensely...

he will turn one years old in about 10 days...gosh, so fast!  i still get so angry when i think that i missed out on 5 months of his life...daily life, i mean...i almost feel a "disconnect" from him...does that make sense?  when i go over to my mom's house, i feel like i'm his "aunty" rather than his mother...so sad...i just hate that...

but...i am getting stronger and better, and hopefully this disease that caused this disruption in my life is gone for good...i can only hope and pray that i won't have to worry about this happening again...