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About Me
gavinrmom
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About Me
mom of 3 youngest is a 2 year old boy with severe factor viii hemophilia w/ inhibitors (we are beating) with ITT daily
mom of 3 youngest is a 2 year old boy with severe factor viii hemophilia w/ inhibitors (we are beating) with ITT daily
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I’m With You
Hi, how are you? I hope things are going fine for you and your son. Just like you said God wouldn't gave it to you if he didn't think that you could handle it. I truly believe that. However, God is going to take care of everything and everything will work for the best. God Bless
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Hey there. Sorry haven't been on here in a while. I'm glad to hear from you. It is good to be able to talk to someone else who is in a similar situation. My son is almost 19 mo. When is your son's surgery? I hope everything goes well you for both you and him. I know it's hard to see someone you love so much and so little go through so much. How is the inhibitor? I just recently found out about a month ago that my son's inhibitor is gone now, thank the lord. I thought it would take longer, but thankfully not. He still has to have his treatments 3x weekly. He is really good about until recently. He is starting to act up since he started day care. I am looking for work and had to take classes for Michigan Works. He's been in there going on two weeks and it's getting harder to leave him there. He is now starting to cry before I leave cuz he knows I'm going. Before he only cried after I left. Oh, my baby. I have new pics I have to put on here. He got his second hair cut and he is so handsome. I would like to see some of you and your boy if that's ok with you. My son's name is Kallel, by the way. I am Shannon. Hope to hear from you soon. Good luck and God bless.
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My son also has severe hemo VIII. I'm sorry to hear that he had to start with his so early. Why does he have infusions every day? That seems like a lot. I'm sure it has to be hard on you as well seeing your son go through so much at such a young age. My son is 18mo. and has a port in his chest since 15mo. cuz of the inhibitor also, but found out last month we beat it. How did you find out about your son's hemo? Was it circumcision? Oh, I hope not. Anyway, good luck with the surgery. I will say a pray for you and your son. I'm sure things will turn out for the best.
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Wow,why does your son need daily treatments? Just for his hemophilia? Or does he have another bleeding disorder? That is a lot. That's too bad that he has to go through all that so early in his life. My son is almost 19 mo. and has had a port in his chest since he was 15 mo. old and has infusions 3x a week. I know it has to be hard on you too to see your son go through so much. If you want to chat or need to vent, I'm a good listener. PM me any time. Good luck with the surgery. I'm sure he'll be fine.
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Close Hemophilia
: Factor XIII (Classic) Hemophiliamy son Gavin is severe factor viii with inhibitors which we are overcoming with daily ITT since he was 7 months old he is now 26 months
Treatments
- Factor VIII (Antihemophilic Factor) Working / Worked
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