I'm hanging on
February 28, 2009 12:24am
Oh well this is my first journal entry. I'm not much of a sharer, but I like to give "updates" to others. I think like …
Progress
25 %
auxfire 
12:19am, March 19, 2009
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About Me
auxfire
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About Me
I'm disabled and have various diseases connected to the Lupus that I have. My hubby and I live alone, kids are grown and gone and we have two beautiful grand-daughters. I love to play online games and work puzzles, and cook and bake.
I'm disabled and have various diseases connected to the Lupus that I have. My hubby and I live alone, kids are grown and gone and we have two beautiful grand-daughters. I love to play online games and work puzzles, and cook and bake.
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Recent Activity
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Journal
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Hugbook
Ray of Sunshine
Cool. I'm finnnally gonna get my first microdermabrasion soon, on my back to clear up a lot of bacne scars. I'm nervous, but excited!
Get Well Soon!
Isn't this pitiful? I hurt all over today also. I hate this...feels like when your getting the flu only you aren't. I guess I'm in a flare. I hope you feel better soon :)
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Hug
Thanks for your words of support. I appreciate them so much!
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Photos
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Support Groups
Close Lupus
I was born with Lupus, but was diagnosed when I was 30. And I'm still dealing with the day by day events of Lupus.
Treatments
- Methotrexate Working / Worked
- I was on this for 2 years and it was working perfectly. Then I changed Dr.'s and he took me off of it. Only drawback to it side effect wise was that it caused me to lose my hair, it started thinning really bad, but it helped with the symptoms.
- Plaquenil Working / Worked
- I'm still on this medication and have been continously on it for about 10 years. It still works for me. I didn't really experience the side effect thing, I haven't had any problems with it at all.
- Prednisone Working / Worked
- I only get the shots, my Dr. suggests that it works best in shot method. I'm warry of the pill form, because it caused me to gain weight and then have problems with Diabetes.
Open Fibromyalgia
I was diagnosed with Fibromyalgia about 15 years ago. Thankfully, I had a Dr. that knew the symptoms and was able to diagnose me.
Treatments
- Acupuncture Working / Worked
- Worked for me when I needed it and was able to afford it. Didn't have any side effects.
- Cyclobenzaprine Working / Worked
- Took Flexeril after taking Effexor and again the medication stopped working for me once my body got used to it.
- Effexor Working / Worked
- Worked for me the first 3 years and then had to change to a different medication. My body gets used to the meds and then they stop working. No side effects for me, I didn't have any.
- Elavil Working / Worked
- Have been taking this for about 5 years now. Helps me to sleep at night. Made me dizzy at first, now nothing...just sleepy.
- Neurontin Working / Worked
- I'm on Neurontin, not for the pain but for something else, and I'm on a high dose 3000 mg. per day, doesn't help with the Fibro at all. No problems with side effects, that I can recall.
- TENS Working / Worked
- Used a Tens Unit around year 8 and it did nothing for me, at all. Gave up after about 9 months, wasn't helping.
Open Degenerative Disc Disease
I was dignosed with DDD at age of 35 when I was suffering from a horrible pain in my arm to shoulder. After 3 years I found that I could have surgery. When I went in to have surgery, I was told that because it was my neck they'd have to do the surgery from the back and the chance of being paralyzed was 50/50, so I opted from having the surgery. When my hubby and I moved to Colorado, I still had the same issues, only there we're 2 Dr.'s doing surgery from the front and so I had it.
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