Better after hiding
March 11, 2009 9:02am
I have vowed to be better today. I had a real break down yesterday and cried for two hours and then called a friend and had her talk me down. I …
Arrianna 
11:39am, April 3, 2009
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About Me
Arrianna
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About Me
I am a writer and owned a small gift business. My mother died of PF when she was in her 70's. I live alone.
I am a writer and owned a small gift business. My mother died of PF when she was in her 70's. I live alone.
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Recent Activity
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Journal
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hurts everywhere
March 9, 2009 10:53am
Im down so low on prednisone that my knees and killing me and my foot hurts where it was shot but without relief. Also I have spinal …
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Journal Entry for February 18, 2009
February 18, 2009 10:59am
"Hello," I said again a bit louder. With no answer, I started to turn away and follow another path but something told me I …
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Valentines Day
February 14, 2009 2:31pm
Today I was personally over whelmed or stuborn, not sure what but I had vowed to work on my financial picture and forms by Suze Orman. I cant …
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Hugbook
Prayer
Will keep you in my prayers
Hug
Thank you for reading my journal. How are you feeling? I know you have been through some rough times. Your friend, Deb
Ray of Sunshine
Hope the sun shines for you today .
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Moment of Peace
sending you the hope of a little peace from your headache. sometimes we just have to let things go and wait for our energy to return.....slow though that might be ! Thinking of you.
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Little Love
I know :( just the thought takes my breath away, and my heart goes out to you knowing that you are living the reality :( I keep wanting to "make the very best" of every minute we have, but we just live life.....you cant be on high alert each minute. Thanks for your support.{hugs}
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Photos
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Support Groups
Close Pulmonary Fibrosis
I was diagnosed about nine months ago with Interstitial Pulmonary Fibrosis. Before that i had severe pain all over my body and was told I had RA or Lupus... but after being on oxygen I have been pain free.
Treatments
- Prednisone Not Working
- I have been too ill to work and too much to do just taking care of my house etc.
- Oxygen Working / Worked
- Prozac Working / Worked
Close Lupus
Lacking anything else, I was diagnosed with Lupus. I also have Pulmonary Fibrosis. I was in serious pain for six months and upon starting oxygen 24/7 my pain is mostly gone. The lower I get on my prednisone the more pain I have.
Treatments
- Plaquenil Working / Worked
- I have been taking it for nine months and cant tell if it worked or prednisone but my pain is mostly gone. Low prednisone is bringing it back.
- Prednisone Working / Worked
- Certainly managed pain in my joints and back and especially knees. Im going on a thing to lower my dose and am now on 12 heading for 10 every other day.
- Oxygen Working / Worked
- Coming from major pain the day after I started O2 247 my pain subsided.
