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  • About Me

    Image of lizy1013

    lizy1013

    Female, 61
    Glen Mills, PA, USA
    Member since February 2

    • About Me

      Work for a religious community in PA. I am single and a caregiver for my mentally ill sister. I have an adorable little dog, who runs our home!

      Work for a religious community in PA. I am single and a caregiver for my mentally ill sister. I have an adorable little dog, who runs our home!

    • Interests

      Philadelphia Eagles, Phillies!! Also, enjoy politics, Hollywood gossip.

      Philadelphia Eagles, Phillies!! Also, enjoy politics, Hollywood gossip.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • 5 Months

      Mood June 19, 2009 2:49pm

      I have been on Gleevec close to 5 months now and am very happy that all my counts have come down and I am in clinical remission.  The side …
    • Wednesday, February 4, 2009

      Mood February 4, 2009 2:53pm

      I was diagnosed with CML on Monday.  I must admit that the diagnosis threw me for a loop!!  I am now kicking myself for not asking more …

    Read Journal

  • Hugbook

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    • Flower

      From specialk1957 August 17

      Hi Marie, Thanks so much for the Good Luck Wish. I'll let you know how I make out. You are so right about this leukemia being a drag. I never knew how expensive you life can be until I was diagnosed with this. Between co-pays, doctor appointments and tests...I'm going broke. Thank God I have insurance, but it's still unbelieveable how much money one pays out to keep their life going. Oh well, hopefully I get some good news. I'm off work today, however it's so hot outside, I don't feel like doing anything..lol. Have a great day and I'll write to you soon letting you know what the new doc says. Karen

    • Hug

      From abocage August 9

      Thanks Marie!! It was a great day!! I hope the year to come is just as great!

    • Ray of Sunshine

      From abocage June 20

      It has been a while! I have been having a crazy time here lately. I recently became the temporary guardian of two little girls. Their mom is a drug addict. So the stress level has been high to say the least. All will get better though... just trying to be patient. How are you doing??

    • Flower

      From specialk1957 June 19

      Thanks Marie, I'm hanging in there. I'm in Reading, so I've been treating at St. Josephs Cancer Center. I know what you mean about the bone pain. I have it too, but I take DayPro (another anti-inflammatory) for my neck problem, which I have had for years, so they help the bone pain. The worse side affect I had was the dirreaha, but that started to get alot better, but now, since I'm stopping the Gleevec, I will probably go thru those side affects again. I never had tearing, but I had dry eye. That was aweful too, in fact I still can't wear my contact lens for long periods of time. I was so happy my counts were really getting in line, but I knew my WBC was going down, down, down, so I had a feeling it was going to come to me stopping the Gleevec for a few weeks. Hopefully it won't be for too long. I had blood work done today...I'm anxious to see if any of the counts changed being off the Gleevec since Tuesday. I know that isn't long, however it only took the counts to start going down days after starting the drug, so maybe the same thing will happen going off the drug. I'll keep you posted and thanks for writing. Have a good weekend. I'm off to the Phillies Game on Sunday. I certainly hope the rain stops and they WIN the game! Take care.

    • Hug

      From abocage May 17

      Thank you Marie! I am definitely doing so! I took the kids out to the pool today, but I sat in the shade. :( I am not used to that... I wanted to be in the sun and in the water, but we have triple digit temps right now so probably not the best of ideas.

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