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  • About Me

    Image of Bvlee

    Bvlee

    Female
    San Diego, CA, USA
    Member since February 1

    • About Me

  • Recent Activity

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  • Journal

    • Just living day to day..

      Mood February 2, 2009 9:32pm

      I went upstairs for the first time. It had been two years since I set foot upstairs- in my own house. After I got back from the hospital, my panic …

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  • Support Groups

    • Close Organ Transplants
      Types: Lung

      I received a double-lung tx in 2001. I am now 45 years old. I had several surgeries after that, always leaving me drained and sad that "life still goes on..." I now think I'm having hormonal changes which is making me weaker than I've ever been. The panic attacks are daily and the palpatations are are so hard to control. I try psychotherapy, breathing and relaxation techniques, meditation and lots of prayer. Going to see a doctor abt the hormone problem, but everything else is self-treatment

      Treatments

      Azathioprine Somewhat Helpful
      This incresed my WBCs.
      Cellcept Not Working
      diarrhea
      Lung Transplant Working / Worked
      Tx since 2001 I had several surgeries after that. Notably I was throwing up blood by the cupfuls. I found out pulmonary arteries returned.
      Prograf Working / Worked
      Rapamune Working / Worked
      also called:sirilimus;
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