Off And Running With My Mouth....
February 5, 2009 5:12pm
What a mood I am in today! I am feeling pissed off, joyous, righteous, sad, tired, hopeful..Geez, what a mess!
I wouldn't trade the …
Progress
5 %
KoKo63
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About Me
KoKo63
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About Me
I am a 45-year-old mother of 3 kids, ages 13, 11 and 9. I am almost divorced, a nightmare that has taken over 2 years to accomplish. I was diagnosed with RA 11 years ago, although I have had mystery aches and pains for at leat 10 years previous to that. I was told I had Fibro back when it was called Fibrositis, but never believed it as I was usually able to get some relief from anti-inflammatories. I also have a long history of depression and was put on Cumbalta about a year ago. I believe that the Cymbalta has definetly helped with my perception of pain. I realized this when I saw my knuckles hot and swollen, but didn't feel it as much as one would expect. I believe it has the combination of Orencia and Cymbalta that has allowed me to start knitting and crocheting again..My hands look horrible and painful, but don't feel as bad, and that is fine with me!
I am a 45-year-old mother of 3 kids, ages 13, 11 and 9. I am almost divorced, a nightmare that has taken over 2 years to accomplish. I was diagnosed with RA 11 years ago, although I have had mystery aches and pains for at leat 10 years previous to that. I was told I had Fibro back when it was called Fibrositis, but never believed it as I was usually able to get some relief from anti-inflammatories. I also have a long history of depression and was put on Cumbalta about a year ago. I believe that the
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Interests
Reading, crocheting, knitting, scrapbooking, walking
Reading, crocheting, knitting, scrapbooking, walking
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Recent Activity
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Journal
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Distraction
February 3, 2009 10:44pm
I am so thankful for distraction. I am always distracted. I believe it is a coping mechanism, or being a mother of three, two of whom have their own …
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Where Was Jack?
February 3, 2009 1:03am
How come Jack Bauer only had a few minute appearance on 24 this evening?? And, Derek the cop from All My Children's sister, Livvie, the …
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Hugbook
I’m With You
KoKo, i am sorry it has taken me so long to get back to answering your message. alas, fields in gone in lake forest. they closed the doors a couple years ago. people were very upset. nothing has gone in there yet. they redid the whole market square with brick pavers. it really does look lovely. you know how those folks are--it has to look nice. a lot of some of the smaller stores have moved out, but it is all rented and looks great. i go to dr. jennifer capezzio at lake forest hospital for my rheum. dr. there is one in libertyville who is supposed to be very very good. i would remember the name if i heard it. i am in florida for the winter so i cannot look for you. wacaundo is still there; i believe they sold the orchard and put townhomes up. they did that somewhere is the vicinity. forgive all the spelling mistakes--too tired to correct them. have a nice valentine's day and stay in touch. twinks
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Celebration
someday people will really understand that a MOTHER knows what is best for her child---usually----most of the time. i congratulate you on making the right choices and doing what you thought was right. you go girl twinks
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Hug
hope you are feeling better. distraction is the BEST; keeps the mind active, you cannnot find a better alternative to the reality that sometimes is not so great. twinks
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Get Well Soon!
koko, i am sorry about your experiences with the pred. i did hear that if you are on them too long your adrenal glands are compromised and they stop working. so, i think your first doctor may be right. sometimes i think all the meds are a double edged sword. if you hadn't taken the steroids, you might have felt worse for 11 years (might be small price to pay). it is something we never know. hindsight is always better. but i think you did the right thing for 11 years. write back. my best to you. twinks
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Get Well Soon!
all these immune diseases are horrible. i just came off steroids. felt incredible while on them. you say you take a small daily dose, may i ask how much that is. it was the only time in years i felt better. i would like to pursue this with my doctor. thank you. twinks
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Support Groups
Close Rheumatoid Arthritis
I was dx'd with RA when I was 34, just after my second child was born. I have been on most of the popular RA medications. I am currently taking Orencia, which has worked the best for me and it has worked the longest.
Treatments
- Arava Not Working
- elevated liver enzymes
- Celebrex Not Working
- caused edema
- Enbrel Not Working
- allergic reaction
- Humira Not Working
- chronic infection on foot
- Kineret Working / Worked
- It took forever, but worked very well for me. Eventually it pooped out...
- Methotrexate Working / Worked
- horrible side effects, didn't do much, raised liver enzymes
- Orencia Working / Worked
- current medication, working well, hasn't pooped out yet
- Plaquenil Not Working
- allergic reaction
- Prednisone Working / Worked
- still take low dose
- Remicade Not Working
- caused drug induced Lupus
- Voltaren Not Working
- didn't do much
Close Anxiety Disorders in Children
I have an 11-year-old son on the autistic spectrum who suffers with panic attacks. He started Paxil in October and is doing wonderful. I also have a 9-year-old daughter who has major anxiety so bad that I have had to take her out of school and homeschool her. She has her 1st Dr. appt w/psychiatrist this week.
Treatments
- Paxil Working / Worked
- 15 mg of paxil for my son works very well. He has some dry mouth issues and ! gas! This is amazing as he has been on many meds in his life and has always had major side effects. It has been a very effective and relatively quick acting treatment for him.
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Friends
