my kyle
January 31, 2009 6:37pm
my kyle
this is for every parent out there who has a child with williams syndrome.
we haven't been to the gendist yet but i already know. i've …
mommyofkyle 
4:55pm, February 9, 2009
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About Me
mommyofkyle
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About Me
i am a mother of 4 boys. i have twins kyle and tanner they are 18months. and owen is 2 noah is 4. i stay at home i am hoping to be a nurse one day. my son kyle was born with blue baby syndrome he takes alot of care.
i am a mother of 4 boys. i have twins kyle and tanner they are 18months. and owen is 2 noah is 4. i stay at home i am hoping to be a nurse one day. my son kyle was born with blue baby syndrome he takes alot of care.
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Good Luck
Yes you can have seizures in your sleep please read my profile in daily strength please get it seen to by a doctor love to you
I’m With You
Good luck and best wishes
Hug
Welcome to daily strength.
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We get snow at my Mum's house. When I was at school we use to get about 5 days off a year because of snow lol. I agree, I wish it was summer all year round. I do feel like a trucks run over me most days. I'm really exhausted most days and sore. I've got really bad tummy pains. My doctor thinks it's endometriosis but I have to wait to see a specialist. I'm going back to University today. I have to leave my dog =[ i'm going to miss her heaps. My plane leaves in about an hour and a half.
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I know. It's so sad.. You'd probably like NZ and Australia. Haha no not really! I live on the coast and couldn't imagine not living by the sea lol.
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Support Groups
Close Williams Syndrome
waiting for geneticist appointment in February 2009. i think my son kyle has williams
Close Congenital Heart Disease
Type: Tetralogy of Fallotmy son kyle was born with tetralogy of fallot. he has had 3 operations in the first year things have been hard.
Treatments
- Digoxin Working / Worked
- things have been a mess after the full repair congestive heart failure pulmonary regurge
Open Fibromyalgia
i am a married 23 year old mother of 5 boys. i have been dealing with my fibro for over 10 years. yes, believe it! i wasn't diagnosed till i was 15 but i have had this even as a small child. the horrible aches and heaviness in my legs muscle spasms some days i can hardly move other i just cry and pray one day it will go away i hate my condition and i resent it. and its hard for me to believe nothing works and nothing really helps but taking lots of vicodine.
Treatments
- Cymbalta Not Working
- took it for 5 months helped very little
- Effexor Not Working
- made me very tired i couldn't function. didn't help pain
- Gabitril Not Working
- made me crazzy!
- Lyrica Somewhat Helpful
- makes me feel messed up. i can't drive. i have 5 kids, yeah right!
- Neurontin Not Working
- made me angry
- TENS Working / Worked
- does wounders
- Ultram Too Soon to Tell
- made me sick
- Vitamin B12 Not Working
- i was low pain wise it did nothing. i had high hopes that this alone would take away my pain i was fooling myself!
