Tired of being angry all the time
April 24, 2009 10:01pm
There isn't a theme for Rage so that will have to do. I am so tired of fighting this depression. This is the first time that I haven't …
Progress
20 %
ricksdar
1:45pm, April 18, 2009
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About Me
ricksdar
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About Me
I am disabled/retired with a rare disease, F.O.P.. I have four grown children, four grandchildren and a wonderful husband. I love to camp, fish, hike and swim. I love to flower garden when I can. I enjoy almost all crafts, home remodeling and writing. I have a strong belief in God. I believe that if we could just give our youth strong morals, a loving but firm hand and high expectations they will go far. I believe in family, old fashion values and love and laughter.
I am disabled/retired with a rare disease, F.O.P.. I have four grown children, four grandchildren and a wonderful husband. I love to camp, fish, hike and swim. I love to flower garden when I can. I enjoy almost all crafts, home remodeling and writing. I have a strong belief in God. I believe that if we could just give our youth strong morals, a loving but firm hand and high expectations they will go far. I believe in family, old fashion values and love and laughter.
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Interests
People, writting, crafts, camping, fishing, and now the internet
People, writting, crafts, camping, fishing, and now the internet
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Recent Activity
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Journal
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Spinning
April 16, 2009 7:43pm
Now we all know that I can't make a short journal entry!!!! I just have so much pinned up inside that it all comes pouring out. I did have Rick …
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On the road again!
April 4, 2009 6:02pm
I just love Spring!!!!!!! I just found out that I get to go out on the road to Illinois with my hubby in the big truck!!!! It has been almost two …
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Feeling Bad
March 28, 2009 4:55pm
I feel just awful because I haven't been able to keep up with DS/Chronic Pain as of late. I had another flare-up,(for those who …
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little break through
March 14, 2009 9:55pm
I found out that my daughter is working here in our little town of 1100. She still hasn't talked to me since the middle of Feb. and I still …
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Hugbook
Hug
hi, how have you been? havent heard from you hoping your ok . i have been neglecting my daily strength all together. i have a wonderful man in my life now. he came from california to help me and my daughter get back and forth to portland. he has truely been a life saver and i can honestly say the biggest source of support since i have been down and out. wow i cant believe i have been in pain for almost 4 years now. well things are good in one aspect of my life (being loved by a grand man), but the pain part could be better. the insurance decided to no longer cover one of my medication $150 a month. the other option in long acting meds I happen to be allergic to. I am without right now and taking a combination of old medications until I can figure out what to to. good news on the hopeful front. just when I thought that the doctors had given up on me I am getting some hope of real health care. my condition has worsened with bulging disk in neck and warning from the doctor that a whiplash could cause paralasis. hoping that you and your hubby are just busy on the road. kim
Flower
These are for you in hopes they will brighten your day. You have been a good friend. I am always here to listen. xx Christine
Shout Out
Gosh I so wish I could be as brave as you are! You dont know how much you inspire me to fight no matter how hard it gets. Keep up the strides and know that you are never alone! God bless you my sweet friend.....Christine
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Present
Happy Belated Birthday. -HUGS- Cookie
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Well Done
Your advice made me smile. It uplifted me so much You are great and you have such a big heart,too! I feel like I did what I did out of principle it definitely wasn't done out of malice but I felt like if I befriended this woman she could and probably would do the same thing to me too. -HUGS- Cookie
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Photos
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Support Groups
Close Obesity
I have been obese for eight years now. I weight 320 at 5'3. I am a walking time bomb. I am disabled to the point that I require bed rest up to 20hrs a day. I have a rare disease, FOP, which has had this as one of the side effects of medication and non movement. I am also fighting depression continually and loneliness. I am home bound for the most part.
Treatments
- Avoid Certain Foods / Chemicals Somewhat Helpful
- Hard to stay on it. My medication causes me to crave ice cream, yogurt, cereal,
- Gastric Bypass Surgery Considering
- I'm not sure if my body would allow this procedure with out a flare up and new bone growth.
- Overeaters Anonymous (OA) Working / Worked
- I had been a member or OA probably 20yrs ago. I found it to be extremely helpful. You have to be willing to work the steps continually.
- Swimming Somewhat Helpful
- I love water, it helps stop the pain and I can move and swim one armed! I live in a small town with no pool and we can't afford one.
Close Chronic Pain
I have fibrodysplasia ossificans progressiva, FOP. I have bone masses growing threw out my body. I am in constant pain, controlled by lots of different medication. I have been active with FOP for nine years. I have had a rib resection, partial shoulder blade resection and partial rotator cuff resection. All on the left side of my body. I have a supportive hubby, 4 wonderful grown children and 4 perfect grandchildren. I struggle with daily things, fight depression and hate my medication!
Treatments
- Chiropractic Adjustment Not Working
- I can not have this done due to all the bone growths in my body.
- Duragesic Patch Working / Worked
- Works great for me, probably the best. The problem is I build up a quick tolerance to it and have to go back to opiods.
- Flexeril Not Working
- Worked a little in the beginning but soon was not strong enough.
- Heat Not Working
- Never worked for me. Ice works great!
- Hydrocodone Working / Worked
- I use this for break through pain. It works great.
- Lidoderm Working / Worked
- Helps my knees deal with not only the bone growth that is seizing it over on left side, but with the muscle pain due to massive weight gain.
- Meditation Working / Worked
- This is something I practice daily. It helps keep my mind from consentrating on the effected areas.
- Methadone Working / Worked
- This is the pain medication I am on as of now. It does work, but I don't like feeling as though I'm living in a fog, loss of short term memory, and sleepy a lot of the time. I feel as though I have no energy at all.
- Mobic Working / Worked
- This does help with the knees and lower back.
- Morphine Not Working
- I had a bad reaction to the oral. I got sick to my stomach to the point of dry heaves.
- Nerve Blocks Not Working
- Doctor said it never had a chance. I'm nothing but hamburger inside under my left shoulder blade.
- Neurontin Working / Worked
- I love this medication! It helps so much, I can really tell when I am with out it.
- Oxycodone Working / Worked
- I use this as one of the pain meds the rotate me on. I am not on it as of now, but it did work to help control the pain and make it bearable
- Physical Therapy Somewhat Helpful
- Aqua therapy works when I can get into a pool. Living out in the country it isn't simple.
- TENS Not Working
- This was tried prior to knowing what I had and it made the pain worse.
- Ice Pack Working / Worked
- I can lay on this all day long. Once I get past the pain stage to the numb stage!
Open Fibrodysplasia Ossificans Progressiva
I was diagnosed with FOP ten years ago. I am 44 years old. The left side of my ribcage has almost sealed over now. I have about 25% movement left in my left arm. It has recently started on my joints. I go into flare ups about six times a year, although I have noticed that stress causes a flare up to come on. I am married to a wonderful man. I have four great children who are all grown now. I have two girls and two boys. I also have four grand children 2 boys and 2 girls.
