We're on Facebook!
Check out our page!
DS Store is Open
DS t-shirts and more
Advertisement
  • About Me

    Image of JaneyBell

    JaneyBell

    Female, 59
    Albemarle, NC, USA
    Member since January 28

    • About Me

      I am married and we have one daughter, Brigette. Brigette is 32. I am retired and my husband is self-employed. My hobbies are reading, trips to the mountains and watching TV. I am a Christian and have a strong faith in God and his son Jesus.

      I am married and we have one daughter, Brigette. Brigette is 32. I am retired and my husband is self-employed. My hobbies are reading, trips to the mountains and watching TV. I am a Christian and have a strong faith in God and his son Jesus.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Test results are back....

      Mood May 3, 2009 8:37am

      My test results are back and the news is good.  Hemoglobin A1c is 5.4.  Hip hip hooray!  Growth hormone target is to be less than 1.0 …
    • My quarterly trip to the Endocrinologist....

      Mood April 20, 2009 3:08pm

      My Endo was very patient today.  She listened and took time to address each item on my list.  I do always make a list or I'll forget …
    • More about me

      Mood February 1, 2009 6:51pm

      Well, this is my first journal entry and I'm already feeling quilty.  I titled it "More about me" and then said to …

    Read Journal

  • Hugbook

    Give JaneyBell a hug



    • Hug

      From molehands September 20

    • Hug

      From MBritt August 19

      Thank you Janey! I appreciate it a lot. Did you undergo radiation therapy? My doctor said it's more advanced than gamma knife. I forgot the exact term. I have a 2 year old son and hope to have at least one more child. Your stories inspire me.. that there's hope for us after all. They are all empowering. Thanks!

    • Hug

      From UlrikeCT August 1

    • Ray of Sunshine

      From UlrikeCT July 26

      thank you for the hug! Felt really nice! I am going back to the neuro surgeon Tuesday, the date will be set. What was your IGF-1 before and after surgery?

    • Hug

      From J0KEYJ July 7

      Janey saw your red face leaving you with a gentle hug.JJx

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Feb 28, 09 268 days ago.
  • Support Groups

    • Close Acromegaly

      Diagnosed with acromegaly in January 2008. Tumor was removed April 3, 2008. IGF-1 and GH drastically reduced but still above targets. Post surgery MRI shows possible risidual tumor. Began Sandostatin LAR 4 months ago. First blood tests post-surgery shows IGF-1 and GH within target. Just had second blood tests and still within target...Hip Hip Hooray. Still have acro symptoms or could be octreotide side effects: fatigue, hip pain, hair loss

      Treatments

      Octreotide Working / Worked
      IGF-1 and GH are within target range. I am having some side effects: headaches for 1st two days following shots, some diarrea, hair is dryer and showing some hair loss, fatique by middle of afternoon, and increased blood sugar levels. I check my blood sugar twice/day and am on a reduced carbohydrate diet to control that.
  • Groups

  • Friends


Advertisement
Content on DailyStrength.org is for informational purposes only. We do not provide any medical advice, diagnosis or treatment. More info
Portions of support group and treatment information provided by Wikipedia under the GNU FDL license
Copyright 2006-2009, DailyStrength, Inc. All rights reserved.
Terms of Service | Privacy Policy | Report Abuse | HSW International | HSW China | HSW Brazil