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  • About Me

    Image of rabidmama

    rabidmama

    Female, 37
    back woods LOL, PA, USA
    Member since January 24

    • About Me

      My daughter has sever plexiforms, She has NF1, she has a rare worst case one. I've been doing NF for 9 1/2 years. Feel free to ask me any questions. I am on myspace and I have a ton of NF friends.

      My daughter has sever plexiforms, She has NF1, she has a rare worst case one. I've been doing NF for 9 1/2 years. Feel free to ask me any questions. I am on myspace and I have a ton of NF friends.

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    • Hug

      From jibo June 8

      just wanted to send you a hug and see how you and your daughter have been doing lately

    • Little Love

      From jibo June 1

      heres a little love for ya

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  • Support Groups

    • Close Neurofibromatosis

      I have NF1. I didn't know I did till after my daughter was dx. By that time I had 2 kids. My daughter has bad plexiforms

      Treatments

      Gleevec Too Soon to Tell
      We just got it last night. Going to start using it as soon as mega scan 2009 is done. Ive heard good things and at this point I have no other choices.

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