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buckingl 
12:42am, November 2, 2009
Well...................I have not updated this in a few days. My focus has been to get through the work week as it felt like an almost impossible task. I am having to lie down in my lunch hours as I am experiencing EXTREME fatigue and it is pissing me off. My day off yesterday and all I was able to do was sleep......I had so much plans but could barely walk to the toilet. My rash is burning hot and pain full on. I am practsing radical acceptance which is to accept this no matter what. I hope for a good day to come my way soon. My partner has been very supportive and even my teen is trying to think beyond herself. I have not seen much of her on the weekends since her ever expanding group of friends invite her out all the time!!! Its valentines today so I recieved a succession of flowers!!!! Still some romance even after 14 years. I have not been able to exercise and my wish to reconnect with some friends has not happended due to my health............I am trying every natural supplement in the books it is so expensive.I do not know where we would be if I had to give up work!!! On the up side it was cold and raining this morning and last night thank god. A break from the heat!!!!!!!!!!! I have had 3 good sleeps now in a row which helps heaps. My aprents are coming next weekend and I am not looking forward to that it is such a drain on my energy and I like my space. My dad gets grumpy easily and expects to be served meals.......and I have a big birthday party for my daughter who turns 13 on the 20th.................not a good combination. I wish I could just say NO..............well better sign off and help with the housework..........my man BLAIR has ordered me to stay on the couch so I am ok for tonight but no amount of resting ever releives this incapactating fatigue as u all know!! Over and out! Lee
Comments
Oh I do know the fatigue so well. I wish I could say I had the answer but I can't. Just rest when you can, try not to take on more than you have to. If you have been ordered to the couch -do it! LOL Be careful of what supplements you are taking-some may not be good for Lupus. Especially the immune system boosters. B vitamins help some with energy. Once I was on high-dose DHEA, but it is not for long term. Have you had your iron levels checked for anemia? Sometimes that adds to the fatigue. Eat leafy green veggies and fortified cereals for extra iron. Liver is good too if you can stand it. LOL Accepting the disease and not stressing about helps too. As you probably know, the stress from fighting it isn't good either. I think it's great that you can still work, as hard as it is, but you will have to give up other tiring activities to compensate for all you give of yourself by working. Accept any and all help that is offered! Like I said, if your partner is willing to clean for you-LET HIM! LOL Well, I guess that's my two cents for today. Hope it helps! :) Cheryl
BeautifulDreamer
Thanku sooo much for this awesome advice!!!!!!!!!!!!!!!!!!!!!!!!!
buckingl