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buckingl
Female, 39, Auckland, NZL
"not very happy today. Lupus is doing ok...just a bit flat:("
12:42am, November 2, 2009
Journal Entry for February 10, 2009 Mood
Tuesday, February 10, 2009 | A General Update story

What to say..mmm.......well back at work.  Busy day running groups and seeing cleints.  Energy intially ok but then rash arrived this arvo along with the heat and the pain both the rash and general body aches.  Have spent most of the evening watching telly.teenage daughter grumpy so avoided going there....some escapism into the tv...............while trying all night to get on top of this pain.........pain is something that wears you down......it just always there in varying degrees.I forgotten what it is like to have a normal body........and I had to listen to a collegue rave on about how tired and sore he is and he is completely healthy......................my tolerance was not too high for this today............I am tired and really hoping for a better sleep tonight so I better sign off and head to the bed.........and hope now the rain has arrived that the night will be cooler..................fingers crossed! 

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Comments

  1. BeautifulDreamer

    I sure hope the pain has left you during the night! It is no fun. I get this way too where everything hurts and is bothersome. I am just plain uncomfortable. Sometimes it lasts for just a day and then sometimes for awhile. We never know do we? I hope it cools down for ya too. Do you have anything for the rashes? I get them often and have a cortisone cream on hand always. It's a prescription called Topicort. It works in two days to clear any rash that comes. Just a suggestion. :) Cheryl


    BeautifulDreamer

  2. buckingl

    Thanks Cheryl! My rashes do not seem to respond to steroid cream. They are so hot and bright red and move around to different parts of my body....cold flannels hellp. I put the cream on the bottom of my feet though which does help when I am trying to sleep. The pain is better.more manageable. Some times I am completely pain free..............and the I have ongoing non stop pain. I worry about the meds I take to treat this as the are addicitve.but I cannot live and be useful if I am in a lot of pain sooooooooooooooo I do what I have to do. How r u going..............???? Love Lx


    buckingl

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