LsaB's Journal

I am new to this site.  And been going to doctors for almost 3 yrs, with multi-symptom flares. I suffer with no help from the doctors. They are afraid of someone in my condition. They can not treat something they don't know anythingabout. Or its not their field. I even left my state and went to outside hospitals...BOSTON. And now have a team of doctors...who just don't know.  They've checked lupus...ms..lyme disease..blah blah blah. I'm 36 yrs old!!!! Too young for this to happen. I would like to know what is taking over my life...I have 2 girls. ( that need me ) Anyone hear of Porphyria disease?? Their checking me for that too..with bechets..pots disease..extremely rare diseases. Anyway it felt good to let that out. going to the neuro next monday..but I've seen 10 of them. Maybe this one will be better...