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  • About Me

    Image of LsaB

    LsaB

    Female, 37, Married
    USA
    Member since January 20

    • About Me

      My name is Lisa. And I'm a mystery to all my docters near and far. I do hope they come up with something soon. I'm married. 15yrs. Two beautiful girls. Three doggies-yellow lab-Cayden, mini yorkie all the way from NY-Tony, and silk terrier-Angel.

      My name is Lisa. And I'm a mystery to all my docters near and far. I do hope they come up with something soon. I'm married. 15yrs. Two beautiful girls. Three doggies-yellow lab-Cayden, mini yorkie all the way from NY-Tony, and silk terrier-Angel.

    • Interests

      Interests: Anything! UFC fights! Martial Arts-had to stop-but I think i'll go back. Piano music. Love to go watch Hockey games.The Beach to watch the waves. reading books ( i love to learn ) Cooking, am told to open my own restaurant!

      Interests: Anything! UFC fights! Martial Arts-had to stop-but I think i'll go back. Piano music. Love

  • Journal

    • This entry is private

    • researching and i think i got it!

      Mood February 3, 2009 2:01pm

      I think i got it. Or not. I don't know why the doctors wouldn't have found this. My MRI of last June....which is my recent one, states I have …

    • Very SAD day!!

      Mood February 1, 2009 4:43pm

      Today I was told one of my favorite uncles died! He was 52 yrs old. He went for a walk, and didn't come back on time. So my cousin went to go and …

    • another cloudy day..

      Mood January 31, 2009 7:28pm

      Thought I was doing okay..felt as normal as I could. Until this afternoon. I was driving a friend who has MS. Doing errands. Helping her get out of …
    • Another Day...

      Mood January 23, 2009 7:54am

      Woke up this morning ....which is good!!!! I would like a day of 5 maybe 10 or even 20 minutes of a pain-free break. This time its been constint. I …

    Read Journal

  • Hugbook

    Give LsaB a hug



    • Hug

      From CherDog November 15

      Thanks. I know it has been a while since you posted this, been so busy with health I haven't been online much. I don't think I've heard of Dysutonmia before. It surely sounds like what I may have. Have you been diagnosed with this? If so, how and who diagnosed you with it?

    • Hug

      From Zebransa October 27

      Hope everything is going better with you. There is nothing worse than uncontrolled pain. I hope you are feeling well!......Rhonda

    • Hug

      From CherDog September 25

      I feel for you. I've been sick over 5 1/2 years and seen hundreds of doctors, etc., and I'm still suffering - no one knows what is wrong with me. Please know you're not alone. Just don't give up! Each day I wake up and think I'm grateful to be alive and then I try and figure out ways to heal and get well. And my best advice, never give up!

    • Hug

      From Zebransa August 27

      Have missed you. Are you okay? Hope you have a great week!
      ....Rhonda

    • Hug

      From Zebransa July 15

      Haven't seen you on lately. I hope everything is good in your life.
      ....Rhonda

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Jan 30, 10 69 more days.
  • Support Groups

    • Close Migraine Headaches

      too long of a story

      Treatments

      Amerge Not Working
      Aspirin Not Working
      Avoid Certain Foods / Chemicals Not Working
      Axert Not Working
      Botulin Toxin Not Working
      declined botox injections....scared me
      Caffeine Working / Worked
      to open blood veins
      Excedrin Working / Worked
      worked if it was a minor migraine
      Fioricet Not Working
      tried, not worked
      Fiorinol Working / Worked
      had them when i was little
      Imitrex Not Working
      can not take triptans...bad reaction..chest pain...jaw pain
      Maxalt Not Working
      tried did not work
      Naproxen Working / Worked
      i take them to try and reduce swelling of the blood vessels
      Relpax Not Working
      not work
      Topamax Working / Worked
      on 400mgs a day and seems to cut them down, but still get them. side effects are pins and needles in fingers and feet, reduce weight, and memory loss.
      Tylenol Not Working
      never touched migraine
      Zomig Not Working
      thought my head wa going to explode! chest pain! can't take
    • Close Carcinoid Syndrome

      I am currently being checked for carciniod and pheocyrcotomias. its been a long long road. They can't find the tumor or tumors if any. i have right rib pain, i call them flares and want to pass out, also liver pain which extend to my back at times. no medical treatments, doctors can't trat what they don't know..blah blah blah

    • Open Hypoglycemia (low blood sugar)

      diagnosed with it 2003

    • Open Medical Mysteries

      Been a medical mystery for 3yrs. Multi-symptom flares ranging from can't walk, mouth sores, rashes, and just stating to effect my brain. Doctors where I live can't figure me out. Now seeking help in Boston. And they are giving me the run around " not my field..see so-n-so"....I hope they figure it out soon

    • Open Hypothyroidism

      LsaB hasn’t entered any details for this support group.
    • Open Reflex Sympathetic Dystrophy

      Was diagnosed with rsd in my right arm and shoulder in 2004..took a long time!! wasn't the normal rsd path..and flare up. it was a martial arts injury hit to the neck. which took a month to feel. Now I am currently having trouble with my leags, swelling, pins and needles, red, cant touch them!! and burning...plus theres times I cant walk. Also extreme weakness. I was told I could also have RSD in the legs now...I did have an abdominal surgery but the drs aren't saying its from that.

      Treatments

      Lyrica Working / Worked
      been on it before for my arm and hasn't worked...plus i had my leg symtoms back then..didn't help
      Neurontin Working / Worked
      never worked
      Oxycodone Working / Worked
      on 10/325 I don't like them and nothing helps the pain..they don't work!
  • Groups

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