Here we go again!!
September 2, 2009 8:14am
Nothing much to say, but my head is BOOMING!! Shunt failure AGAIN!!! Levels are suppose to be at 5 to 9, visit to E.R. couple days ago levels at …
duchessm 
2:04pm, November 13, 2009
-
About Me
duchessm
-
About Me
I am a nurse (unemployed right now), looking for support and friendship and better understand of this crazy disease.
I am a nurse (unemployed right now), looking for support and friendship and better understand of this crazy disease.
-
-
Recent Activity
November 13
-
duchessm updated their status 2:04pm
Feeling bad... back on Diamox and vicodin PLUS blood pressure meds.. YAY!…
-
duchessm changed their mood to Bad 2:03pm
-
duchessm gave DoaaS a prayer 1:59pm
I am soooo glad to hear you are doing well. Spent the birthday ( thank you for the song!!) in pain. Looks…
November 11
-
duchessm turned 36 12:00am
November 2
-
duchessm changed their mood to OK 12:55pm
-
-
Journal
-
-
Journal Entry for March 9, 2009
March 9, 2009 2:01am
Well I don't know where to start since it has been awhile since my last entry. This is the first time since my surgery 3/05/09 that I have …
-
Journal Entry for March 3, 2009
March 3, 2009 5:10pm
I haven't journal in a while. My feelings going through my head these days. First I have been not feeling well lately and just not wanting to …
-
Journal Entry for February 25, 2009
February 25, 2009 2:00am
Haven't written in a while so here we go. After a week from hell which resulted in two E.R visits. The last one , saturday was ok. Got another …
-
Journal Entry for February 22, 2009
February 22, 2009 3:03am
As I sit here between contentment and disbelief, I decided to journal on the past days events. To start of we got 5 inches of snow in less that …
-
-
Hugbook
-
Present
Happy birthday to you..Happy birthday to you..Happy birthday dear duchess..happy birthday to you..mwaaaaahhhhhhhhhhhh
-
Hug
Ohhhhhh duchess..where have u been my lady?? i missed u so much..how r u doing?? sorry i didn't reply earlier to your hug..i quit logging in into here..BECAUSE..i'm totally cured of IIH,thx God for that!! wanna hear more from u and tell me updates..o.k??
-
Prayer
where have u been my dear?? did u forget about me??
Good Luck
good luck with this next revision. as for the ventrical size comment, I had one NS say the same thing, that he did not think I was a good VP candidate becuz my ventricals were too small yet another said no problem and did the VP operation. Have you seen the MRI CD/film? it is easy for anyone to see the difference between regular and too small. Give em hell girl!
TJ
Prayer
Hey I'm glad to here from you! I hope your atleast getting some relieft from your surgeries...I asked TJ bout you a lil while ago. I've now completed surgery #5. After the 3 lp surgeries I changed NS and switched to a VP shunt and have had 1 revision on it. Keep in touch...add me on facebook if you have one... my name is Brooke Button Peterson.
-
Photos
duchessm hasn’t uploaded any photos yet
-
Advertisement -
Support Groups
Close Pseudotumor Cerebri
Woke up one day 3 a.m. crying in sleep head and eyes about to blow out. Pain too much couple hours later to hospital spinal tap pressure (somewhere 41-45 range). All downhill from there ofcourse with no insurance, but awesome neuro-opto, lossing vision , 9/11/08 optic nerve surgery... Lupus is not helping my condition either... I have had a headace in some form everyday since that day I woke up in mid May '08, with the all the other stuff I have NO life..
Treatments
- Acetazolamide Somewhat Helpful
- make you pee all day suppose to keep pressure down but I don't know
- Darvon Working / Worked
- suppose to DavocetN-100, working better than Vicodin at this point switching of between the two meds.
- Fioricet Working / Worked
- Seems to be helping alot. But does cause HIGH feeling then major sleepiness.
- Hydrocodone Somewhat Helpful
- Have been taking so long it is like an aspirin to me, just takes the edge off the pain.
- Lyrica Somewhat Helpful
- Helped HA simmer dowm but now have a jerkyspastic walk and starting to feel spacey and stutter when I speak.
- Prednisone Working / Worked
- Seems to be help both for my lupus and my PTC BUT the weight gain is an issue. I have gained 50lb in 9 mths an d I was a small girl..
