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  • About Me

    Image of fun5025

    fun5025

    Female, 59
    IA, USA
    Member since January 17

    • About Me

      I have MG, now for 2 years, in remission, but I don't feel like it, my Neurogolist said to call when I saw double, I never did see double even when a had my crisis and was in intensive care for a week. I can work until about four and it like a hit a block wall. I'm now having cognitive problems. Wondering if its drugs or MG or other.

      I have MG, now for 2 years, in remission, but I don't feel like it, my Neurogolist said to call when I saw double, I never did see double even when a had my crisis and was in intensive care for a week. I can work until about four and it like a hit a block wall. I'm now having cognitive problems. Wondering if its drugs or MG or other.

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  • Hugbook

    Give fun5025 a hug



    • Hug

      From LallaUT August 3

      Just because!

    • Hug

      From LallaUT August 3

      Just because!

    • Hug

      From catpow May 27

      Hang in there!

    • Hug

      From LallaUT March 20

      Thank you for the encouragement! Don't get that much of it anymore so anytime is special. Hugs.-L

    • Hug

      From Elainemp March 19

      Thank you so much for the hug. How long did it take you to go into remission? I know I am being impatient -been on prednisone for 1 month and just started CellCept. I just want to start feeling better - some days are good - others not so good. Keep in touch. Elaine

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  • Support Groups

    • Close Myasthenia Gravis

      I've had Mg about 2 years, it took 7 years of about every specialist and a crisis. I'm in remission, but I don't feel like it. I can work now until about 4:00, then a wall hits. My neru said to call when I see double, I never did. He thinks I'm depressed and a new drug and said stress shouldn't affect me.(I'm a top Realtor in my area, I have stress)I had heavy steriods, 5 IVIGs and i think I need another, I have more words than I can give.

      Treatments

      Azathioprine Working / Worked
      I think it's working, but not normal
      IVIG Working / Worked
      I thinked it helped a lot
      Mestinon Working / Worked
      I was told to take as needed, since remission, I think I need more, but not seeing double
    • Close Infidelity

      I found out by e-mail that he was involved again. He had an affair(serious 31 years ago) we did the counceling etc and then had our third child now 29. I thought through out the years that he was nor faithful and ignored, but my body caught the HPV, but I'm thinking from past relationships. I have felt for the last 5 years that he was involved again,married for 39 years very young, high school sweethearts, got married at 19. I found e-mails I was shocked again, this time I want all details,

      Treatments

      Couples Counseling Working / Worked
      He set up the appointment and the counselor wants to see him without me, I said I need that, now he wants to see me, I also have a wierd disease that I have to address it's Mystemis Gravis, stress makes worst.
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