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  • About Me

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    cballi

    Female, 60
    KS, USA
    Member since January 16

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  • Goals

  • Support Groups

    • Close Myasthenia Gravis

      Treatments

      Azathioprine Not Working
      did nothing to help
      IVIG Working / Worked
      worked for awhile then stopped. There were really no side effects. Problem is the my veins are now shot and access is hard which makes this procedure difficult. I had access ports put in and they had to be removed due to staph.
      Mestinon Working / Worked
      I have gone form taking every four hours to every 2 hours.. Time release has stopped working all together.
      Thymectomy Not Working
      Did absolutely nothing as it was done in the beginning to stop the disease progression.

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