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  • About Me

    Image of hart1422

    hart1422

    Female
    port st lucie, USA
    Member since January 7

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  • Support Groups

    • Close Ehlers-Danlos Syndrome

      My Daughter has Ehlers Danlos she got DX with it about 6 months ago She is now 5 yrs old. I dont know 2 much about it and is trying my hardest to learn .... She is in alot of pain for this. and is really looking for info from others who have children who have this.

      Treatments

      Physical Therapy Not Working
      She is in alot of leg pain and muscle pain. This is no way for a 5 yr old to feel. Hope other have ways to help my little girl.
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