Things are very stressful. My husband (Jim) has exhausted is temporary benefits and we are still waiting for his permanent. We hoave no idea when that will come through so for now we are living on my income and we rent a room to our niece. It helps but I dont know how much longer we will be able to stay in this house. It puts alot of stress on us. We are trying to sell stuff but have not been sucessful in that either. So we wait and see what God's plan is for us. Tomorrow I go in for my CT scan for my 1 year mark. I hate that contrast stuff. I am not looking for to that or the non eating part. Well friends please keep me in your prayers for a negative CT and a positive checking account. Thank you and God bless all of you..........Margie
I talked to my sister today and she thinks I should see a Nephrologist. I see my Urologist on Wednesday for a follow up on some bladder issue. My bladder is not empting so they want to follow up on it. I was going to ask him about seeing a Nephrologist. Does everyone with RCC see a Nephrologist? I have another question....my margins werent clear after surgery, should I have had chemo or radiation? My Urologist did the surgery and we didnt do anything afterwards because he said RCC does not respond to chemo. I just want to make sure I am making the right choice. I know it has been almost a year but I have had some pain in that area and difficulty with my bladder. I would just like to know what you guys think. Thanks.......Margie
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I am so happy that I am starting to feel like my old self again. I still have back pain but not it radiates down my leg, I still have to go every 6 months for my CT on my cancer but over all I am feeling better. I have finally given in to the fact that things could be worse. I know that God has given me this trial to show me how to live life again. I have so many friends here that support me and as long as I can pay the internet bill I am happy. LOL.
I wish I could just get off all the medications but each time I try I find out that I hurt. It really sucks. Oh well I will just keep my faith and keep plugging along. Thanks for you support.
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Hi Margie,
i'm so happy to hear that your starting to feel like your old self, looking at things better worse makes you feel worse, so you definatly have the right attitude....Somedays it's a step at a time, but for today your doing great, you are always in my thoughts and prayers, have a great Sunday !!!
Becca
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Hello Margie!
So glad that you are feeling better. I like hearing your positive attitude too, Hon. It sounds like you still need the medications...so don't worry about taking them. No one should have to suffer with pain.
Keep the faith!
Love,
Ingrid
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My husband is not being followed by a nephrologist. He worked with a urologist and oncologist following his neprectomy, and was also given the information that traditional chemotherapy and radiation therapy are not effective in RCC. Are you seeing an oncologist at all? We found that helpful... Karen
kkzimm
I have not seen an oncologist. They said my margins were not clear but the ct showed they got it all. i feel like I am just waiting until it comes back.
margie73