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  • About Me

    Image of mkholmes

    mkholmes

    Female, 47
    San Jose, CA, USA
    Member since January 5

    • About Me

      I was a foster parent for Santa Clara county. I have had 49 chilren come though my home. I am in the process of adopting my 3rd special needs child. She has CF. Due to her special needs and the special needs of my 4 year old, we are going to be a normal family and will no longer be doing foster care.

      I was a foster parent for Santa Clara county. I have had 49 chilren come though my home. I am in the process of adopting my 3rd special needs child. She has CF. Due to her special needs and the special needs of my 4 year old, we are going to be a normal family and will no longer be doing foster care.

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  • Support Groups

    • Close Cystic Fibrosis

      I am in the process of adopting a little girl who has CF. She will be 1 in February. In October, she had a feeding tube put in. At 3 weeks old she was in the hospital fighting lung infections. It is so hard finding parents with other kids with CF. To share our experiences.

      Treatments

      ADEKs Multivitamin Working / Worked
      ok but messy
      Chest Percussion Working / Worked
      I even do it when she's upset. It calms her down.
      Creon Working / Worked
      wish they could find an easier way. We currently give it to her with grape jelly.
      Duoneb Working / Worked
      we switch between TOBI and Dueneb, seems to help. Keeps her lungs healthy and out of the hospital.
      MucoMyst Working / Worked
      Seems to be helping. Keeps her lungs healthy and out of the hospital.
      ThAIRapy Vest Considering
      She should be getting it soon. Would be nice to talk to parents whos children currently has it.
      TOBI Somewhat Helpful
      we switch between TOBI and Duoneb. seems to help. Keeps her lungs healthy and out of the hospital.
      Prevacid Working / Worked
      Helps her to keep her digest her food better.
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