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About Me
JBfromCA
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About Me
I am a 56 year old mother, grandmother and wife. I work full time running clinical trials for medical products. I have been in chronic pain for 5 years due to degenerative disc disease and chronic myofascial pain. The last year has been the hardest of my life due to debilitating trigger points and pain. I am starting to come out on the other side after working very hard to get my muscle tone back with exercise in combination with Myobloc injections and Active Release therapy (which is not covered by insurance). A year ago I was ready to throw in the towel but I kept at it because of my family and am so glad I did. I would be so much better if I didn't have to work, as working at a computer and driving make me so much worse. Hopefully, I can retire early because they will not consider me for disability and I can't afford not to work. I try to be optimistic and be there for my family and friends, but sometimes that is hard to do. I rarely mention my pain to anyone - I figure they don't really want to hear about it and it doesn't make it better to talk about it- so it is nice to have a place where I can discuss it.
I am a 56 year old mother, grandmother and wife. I work full time running clinical trials for medical products. I have been in chronic pain for 5 years due to degenerative disc disease and chronic myofascial pain. The last year has been the hardest of my life due to debilitating trigger points and pain. I am starting to come out on the other side after working very hard to get my muscle tone back with exercise in combination with Myobloc injections and Active Release therapy (which is not covered
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Interests
Family, gardening, reading and crafts. I used to be active in many sports - now I walk and domy exercises EVERY day.
Family, gardening, reading and crafts. I used to be active in many sports - now I walk and domy exercises
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Recent Activity
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Journal
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I was sorry to hear about your blood clot. Hope that is resolved soon and you can get back to your Botox treatments. Your comment about how priorities change reminded me of this quote by John Lennon, "Life is what happens when you are planning other things". That is so true. I will keep you posted about the prolotherapy and keep me updated on your situation. Take care.
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Support Groups
Close Myofascial Pain Syndrome
MPS after 3 ACDF surgeries
Close Back Pain
Post ACDF x2 C6-7, C5-6 and posterior decompression. Left will chronic myofascial pain after last surgery. In addition to meds, I get myobloc injections and Active Release Massage therapy.
Treatments
- Heat Somewhat Helpful
- My heating pad is my best friend. Use it nightly - but I use it on low heat and it has an automatic shutoff.
- Hydrocodone Somewhat Helpful
- Nausea at first, better now. Helps some with breakthrough pain
- Morphine Somewhat Helpful
- Nausea at first, better now. No drowsiness any more. About 50% reduction in pain
- Physical Therapy Somewhat Helpful
- I do stretching and exercises prescribed by PY 2X per day. Also Active Release Massage as needed.
- Stretching Somewhat Helpful
- Do stretches prescribed by PT 2X per day. I get ver tight without them.
- TENS Not Working
- I quit using TENS because it made my symptoms worse.
- Botulin Toxin Somewhat Helpful
- I get Botox Myobloc injections every 3 months. Does not help with the pain but it decreases the spasms by 90
Open Chronic Pain
I started having chrinic back (neck) pain about 4 years ago. Was diagnosed with DDD and spinal stenosis. I have had 3 surgeries 2 ACDF (C5-7) and a decompression. I developed chronic myofascial pain after the third surgery and am now in more pain than before. Botox injections, pain meds and active release therapy are giving me some relief.
Treatments
- Hydrocodone Working / Worked
- Useful for breakthrough pain.
- Morphine Working / Worked
- MS contin brings the pain down a couple of levels.
- TENS Not Working
- Discontinued because it made my symptoms worse.
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Friends
