armywife1995
4:38am, January 6, 2009
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About Me
armywife1995
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About Me
Mother of 2 girls, wife of a Soldier who loves to take care of her family and scrapbook =)
Mother of 2 girls, wife of a Soldier who loves to take care of her family and scrapbook =)
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Interests
Football, Racing, Boating, Reading, Scrapbooking, cooking.
Football, Racing, Boating, Reading, Scrapbooking, cooking.
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Hugbook
Flower
Welcome to the group,here some flowers for you,to help with the nerve pain that you are feeling,I hope you feel better(smile)
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSDX'd in 2005. Tried Rebif, Copaxone, & Novantrone but could not tolerate. Currently on Tysabri infusions once per month.
Treatments
- Baclofen Working / Worked
- I guess it did help the symptoms, however it made me so sick that I can no longer take it.
- Copaxone Not Working
- My body could not tolerate this, had to switch to Tysabri as last resort.
- Novantrone Working / Worked
- Once I got over the side effects (5 weeks but worth it) this helped me feel much better. I'd say this was by far the BEST treatment out of all I have tried, however you cannot be on this long due to the low white blood cell count. I could only get one dose due to the long recovery time I had. But if you can tolerate this, and not have anyone sick around you while you're recovering, this stuff really helps!
- Physical Therapy Somewhat Helpful
- Had PT after a very bad relapse in 2006. It did help with the balance issues quite a bit.
- Prednisone Not Working
- YUCK...bad, bad stuff for me. No thanks!
- Provigil Working / Worked
- I take this for fatigue. I seem to be getting immune to now though, or it is just not helping as much as it used to.
- Rebif Not Working
- This was my first med in 2005. My body did not like it, and Dr. took me off after about a year.
- Solumedrol Working / Worked
- Only PRN for relapses, other than the weight gain, it does help!
- Swimming Working / Worked
- Swimming is a great exercise for me with the MS. It really helps me with the muscle weakness and overall stamina.
- Tysabri Working / Worked
- I think it is helping...not sure yet, have only had 7 infusions to date, and missed a few months due to military getting my records messed up. During which time, I had 2 new lesions show up after a relapse, but since then no new ones. Will update at a later time =)
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